Worried about lymphoma and dismissed by GP

I have spent most of this year reading through forums on this site in a panic and was overwhelmed by just how kind you all are even through your own struggles! I haven't managed to find anyone else with an experience that completely matches mine so far so I'm hoping that by writing my own post I'll be able to get some more specific advice and not spend hours with Dr. Google

About a year ago I noticed that my right tonsil is much bigger than the other one and has a strange texture/surface is probably the best way to describe it. It was the first time I'd noticed so unfortunately googled it and obviously every result was tonsil cancer... Made a GP appointment all the same to be sure because I have so much anxiety regarding my health, and was fairly reassured as they said the tonsil had remained inflamed and covered in scar tissue due to having tonsilitis as a child, they asked if I had and swollen glands, night sweats or unintentional weight loss but at the time I didn't so said no. 
 

However, in January this year I noticed a swollen lymph node only in the right side of my neck (same side as the tonsil)! It seems so large, but more in length than in diameter as it seems to be quite a stretched out oval shape. It's not rock hard but not soft either, like pressing a grape that's been cut in half against a flat surface maybe? It doesn't move straight away when pressed but if I use two fingers quite firmly I can make it move side to side. I'll be honest I was terrified when I found it but waited 2 weeks to see if it went down but it certainly didn't so about a month later I made another GP appointment (an online appointment due to covid) and given antibiotics as the GP diagnosed chronic tonsillitis - no sore throat or any tonsilitis symptoms but I took the antibiotics and still no change. Made another GP appointment online stating that I was worried about the possibility of lymphoma, this time I was told over the telephone that my symptoms didn't match with lymphoma (not reassuring at all when you've spent months researching it and realising that they absolutely do!) but that they would refer me to ENT and do a blood test to 'set my mind at ease'. My bloods came back completely normal which was reassuring for a few days before I found out that actually many people with lymphoma do have normal bloods especially in earlier stages. 
 

Now, almost 10 months later I still haven't been offered an ENT appointment, still panicking and recently I've had more lymph nodes swell, one in my right armpit (still same side) but that one is much smaller and I'm quite slim so not sure if it's enlarged or just able to be felt, and now about 6 in my groin, with the biggest being on the right side yet again. The ones on the left are small, feel like a tiny round seed whereas the one on the right feels exactly like the one on my neck, a big long oval and I'm worried that means they're multiple nodes matted together? I have recently had thrush (sorry for TMI) but the nodes seem to have only appeared after I cleared it with canesten, and Im so scared that it was lymphoma all along and it's now spread, as lymph nodes on either side of the diaphragm being affected would make it stage 3. I feel like it is pointless going back to my GP as they do not believe my symptoms are serious at all - one GP told me the 20 was too young to have cancer and one offered counselling instead of a referral, putting it down to just anxiety but none of them have examined my lymph nodes at all and I have only been offered virtual appointments due to covid. 
 

I'm so worried about this it's affected my life every single day, I'm just starting a new job, getting a house with my incredible boyfriend and have so much to look forwards to but I feel so uncertain about the future...

  • Hello hrjx, 

    Welcome to Cancer Chat. I can understand why you would want to have your lymph nodes looked at rather than having virtual appointments. Perhaps you could try and ring your surgery and explain that this is making you anxious and you could ask whether you could see yet another GP who would be happy if possible to see you in person. You can find out how to get a second opinion on this page. 

    I hope you get some clarity on this very soon. 

    Best wishes, 

    Lucie, Cancer Chat Moderator