Thank you Jolamine, I think it must be about my results, perhaps he just agreed to see me at MDT rather than a phone consultation the following Monday with the breast care team. Here's hoping . 

Certainly is a rollercoaster, thank you for you re-assurances.  Hope you have a good weekend too. 

Love n hugs Mickey xx ️

Morning Jolamine, 

Sorry for the delay on updating you. I've had snippets of information re my surgery results since last Friday and I've been trying to process it.  It didnt help that the surgeon and BCN I saw on Wed for my delayed results apt were pretty hostile to be honest and it was like pulling teeth to get to the crutch of my situation. I was refused my pathology report and not even sat in the consulting room where I could have seen some information on screen.  Basically I was told that I should just accept what I'm told and not ask for more information that could increase my stress.... Anyway, I don't want to dwell on the negative - I've formally since requested my pathology report and will see what response I get to that. 
 

In short, there was another muscinous tumour found underneath - both were in a bed of 5cm DCIS. They found scattered areas of dcis throughout the breast as well as the other known area. They didn't get clear margins on the masectomy and cannot re-operate due to the reconstruction, but told me they probably couldn't get anymore anyway. So next steps radiotherapy added to my treatment plan and I have just received an oncologist apt for 14/02. 

I'm still processing it, but know it has to be done. 

How are you and how is hubby's mobility is it improving at all yet? I hope so. 

Love n hugs Mickey xx ️
 

Hi Mickey,

I am so sorry to hear all of this. It is so difficult when you don't get the rapport that you need with your consultant and nurse. I came up against similar hostility when I was first diagnosed and, eventually changed surgeon after 11 months - what a difference it was to find a surgeon that I could trust and, who was willing to pick up the pieces. It is disappointing to hear that he didn't get a clear margin - do you know how much was left? It is good to hear that the second lump was still mucinous. The DCIS is fairly normal and, I expect that this is still low grade.

 I also had to request my pathology results. Accepting  what I was told and not asking for any more information just isn't me and, I really thought that I was going mad at one stage. You have a lot to process, but remind yourself that this type of cancer is not very aggressive. I am ok thanks, but hubby is not making much progress with his exercises yet. I sincerely hope that you have more success with your oncologist than you've met with so far.

Kind regards,

Jolamine xx

Hi Mickey,

It seems terrible that you don't know who your surgeon was. Did he not come round to introduce himself to you before your surgery, or come back to see you before you were discharged? I sincerely hope that you find your oncologist more supportive and that you can move on to treatment quickly.

Please let me know how you get on.

Kind regards,

Jolamine xx

Hi Jolamine, 

No, my Plastic Surgeon came to see prior to surgery and marked me up. He also came to the ward every day, but no sight or sound about the breast surgeon. 

Thank you, I'll keep you posted. 

Hope things are going well with the sale of your business too. 

Love Mickey xx ️ ️

Hi Mickey,

So much for keeping the patient informed, when you weren't even told who carried out your surgery. I'll keep my fingers crossed for a better relationship with your oncologist!

We're slowly getting there with the business. I had an offer in today.

Kind regards,

Jolamine xx

Thanks Jolamine, I'm keeping my fingers crossed for you that the offer is a good solid one. Love Mickey xx ️

Hi Mickey,

How did things go with your oncologist? I hope that this was a better experience for you, than the one you had with your consultant.

The sale of the business should go through on 1st March. I'll be glad to put it behind me. 
Kind regards,
Jolamine xx

Hi Jolamine, 

I'm really pleased to hear that the sale of your business seems all set to go through. Keeping my fingers crossed for 1st March for you. New beginnings as they say. How is hubby getting on? 

I'd like to be positive and say the appointment went well, but sadly that wouldn't be true. I think having a late apt time 4.15pm didn't help. Reading between the lines the Oncologist must have had enough of seeing clients and so I was passed to her Registrar. That in itself wasn't a problem, but there was no discussion, she literally had the consent form in front of her and started ticking it off. She couldn't answer my questions and had to keep leaving the room to check with the Oncologist. Having done that 3-4 times, the Oncologist then came in. I was told by her that the hospital provided the creams as they had realised it was easier that way. When I asked about this at my planning session last Friday, I was told this was not the case, frustrating again!

Long and short of it is that I have my covid test booked Sat 12/03 and my 15 sessions aimed at chest wall and reconstruction start on 14/03. 

I asked to see photos of anyone with my type of DIEP op who had radiotherapy, but there are none. I have offered to do intermittent photos so that in the future there will be some available in my hospital for people like me who would like to have a visual of how it could impact their reconstructed breast. I had my pre-photos done yesterday. 

I'm still very worried about the impact, but I know it has to be done to reduce my risk of local reoccurrence after positive margins on the masectomy. 

I am also now day 6 on my hormone therapy journey with Anastrozole. I decided to go with the morning to start as prescribed. So far nausea, insomnia and tiredness are the side effects, I wouldn't say my hot flushes are any different, but I still get them anyway. 

Thanks for thinking of me Jolamine. 

Love n hugs Mickey xx ️