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CA125 results are high

ML34
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I am 34 (just this month) and over the last 8 weeks I have lost ovre a stone. At first I didn't really notice as I am small anyway (5.1" and a petite size 6) but then the comments about my weight loss kept coming in and so I have become really self conscious. I spoke to my doctor who sent me for blood tests - they came bacl today showing CA125 level of 42. I am not being sent to have an emergency ultra sound which should be within the next 2 weeks. I am obvisouly really scared, and looking at my symtpoms, I would be naive to think 'this will never happen to me'. I have a daughter who just turned 2 and it makes me so sad the future I once pictured with her has a huge question mark over it. Can anyone else share a similar story and their journey to hopefully a full recovery? 

  • Welcome to the forum ML34.

    I'm sorry that your CA125 level results have come back as high but as you'll see here, there can be many reasons for a raised CA125 level so try not to panic or jump to any conclusions if you can.

    I know that's much easier said than done but many of our members have been in this situation so you're not alone and hopefully some of them will be along soon to share their experiences and advice.

    If you'd like to discuss this with one of our cancer nurses you can call them on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    I hope your ultrasound goes well and the results bring good news when the time comes.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Offline in reply to Moderator Steph

    Ml34 sorry to hear your story so far. 
    I had a baby 6 months ago and like you didn't realise until

    people commented that I was losing weight, 2 stone over last few months. I never really put on any excess weight during pregnancy so this has really scared me, I also had niggling back pain but over last month other various symptoms have started. I have been to gp and because I was really upset she thought I had anxiety, standard blood tests were normal but she didn't do any markers. She wanted me to just wait a month and see how I got on. At first I just heard your bloods are normal so got sense of relief but as soon as I left the surgery I knew I should have pushed for referral. Anyway took a week for me to get to speak to her again and she reluctantly agreed. I then managed to get private appt with gastro consultant and ct scan, all taken several weeks though. I am due my CT results today (over zoom... I did think oh good they can't be bad but the consultants secretary said it means nothing he just is not doing face to face regardless of outcome!)   I feel like today is going to be the worse day of my life, ever since baby was born I have had horrible sense of doom that I won't get to see him grow up. I'm heartbroken. 
     

    sorry I have not helped you at all but just shared all of my worries.  I am sending you lots of positive thoughts and hope you get answers soon 

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