Looking for advice please! Lymphoma?

Hello all,

I'm looking for advice.  I had all sorts of symptoms since March. I've got lump in clavicle lft side, little lump at the back of my neck left side, lots of hard very small lumps under my left arm going to by breast, lots of small lumps in my mouth, earache, horrible night sweats, bone aches, neck and head ache, abdominal pain, very weak and fatigue, l lost 9 kilos since around March/April.

I had lots of tests: neck US, CT scan of neck, Chest and pelvis, lots of blood tests. And they all coming back normal. I wasn't impressed with neck US, because radiologist didn't want to look at all at the lump in my clavicle than he briefly looked at it and put down as 3mm, which l'm sure is wrong, as l can feel at least 1-2cm.  I've been seen by lymphoma team and they discharged me. But  l'm getting weaker and weaker. Saw GP last week and she told me that she can't think about anything else what can be done for me right now.

I'm really lost, don't know where to turn for help.

I read so much about lymphoma because all my symptoms point to that direction and l realize it's can be very difficult to diagnose because there is so many types. I feel like l've got it but doctors keep telling me that I don't but they can't explain what's happening to me either.

Has anyone been in the similar situation? I really don't know what to do. Feel like l need a professional help but don't know how to get it. I feel like doctors are waiting till l become critically ill than they might start to revisit my case again.

Thank you everyone

And take care

  • I'm sorry about all the symptoms you've been contending with Blesskuki.

    It's reassuring to see all the tests you've had so far have come back clear although it must be frustrating not knowing what's causing your symptoms.

    Hopefully some of our members who have been in a similar situation will offer their thoughts and advice to you soon but if you have more than one doctor at your GP surgery you could try getting a second opinion. If this isn't an option, then you could look in to going private. You can find out more about private healthcare just here.

    I hope this helps and you're able to get to the bottom of this soon Blesskuki.

    Kind regards,

    Steph, Cancer Chat Moderator