Need advice, really stuck on what to do

Hey guys it is Ahmed here. I am 26 year old male. I apologise if is wrong place to post so please do forgive me but i am going through daily struggles and am bedridden. For the last 8 months been going through the worst health ever. I am suffering with a crushing fatigue which feels not like a normal fatigue but more of a fatigue where i can not do anything as get sensation that i will pass out. I have extreme brain fog and mental confusion where cannot think straight even with basic things could be told something and forget it straight away and struggle to remember what i did last week. I would say i feel drunk 24/7. My body overheats and feel feverish. I can not get in car as feel like i am going to passout. I have poor night vision. I have clogged ears and ringing ears and struggle to breath through nose. I have no more muscle on my body at all. I have zero appetite and never get thirsty and also am very constipated. My body is extremely weak and cannot walk for long. I get numbness in hands and legs and feel completely disconnected from body. My body is completely out of whack and nothing seems to be working how it used to. I have very bad erectile dysfunction it is like i have no blood flow in my body. I feel so awful i can not tolerate sun or even cig smoke. I feel like i am on my final days which really sucks. Now i know you guys are not doctors but my gp is not really taking me seriously and 90% of my tests have been through private care. 

 

I have had head mri with contrast, ct scan chest/abdomen/pelvis with contrast, colonoscopy, gastroscopy, ultrasound of testicles, ultrasound of urinary tract, nasoendoscopy, chest xray, urine sample, dentist check up, eye test which have all come back normal. I have also had blood tests which included thyroid function, vitamin D, serum ferritun, liver function, urea & electrolytes, bone profile, ESR, CRP, CBC, differential white cell count, testosterone, cortisol, complement with C3 & C4, antinuclear antibodies which were also all normal. 

 

I understand i have had a good workup but honestly i feel like i will never get my health back. I am so weak that even blood tests take it out of me these days and feel like i am struggling to stay alive. I would like you guys to see past my tests, what other tests can be done to detect cancer or what could be causing these symptoms is you have gone through something similar. Again I apologise as do not have diagnosis and shoutout to the soldiers battling this awful illness but i am emotional exhausted and would like some help. Thank you in advance.

  • Hi Ahmed, please don't apologise, it's understandable that you're concerned under the circumstances, it's positive news that all your tests have come back normal but obviously that doesn't fix your symptoms. As you've been handling a lot of this privately I would suggest maybe a PET scan if you haven't already had one, I'm no expert but I believe the pet scan highlights where sugars are being consumed by possible tumours (someone correct me please if I'm wrong) 

    I wish you all the best and hope you figure out what's going on soon. 

  • Hi M, 

    thank you so much for your reply and advice. I will ask my gp for a referral. i understand you are not medical profressional but i appreciate the help. Also is a pet scan more accurate than a ct scan & should i just get chest/abdomen/pelvis or should i get a very body head to toe? I have also been referred for a pantum cancer detect blood test. Their tech and analysis is 97% accurate and it lets you know if there is any cancer present in the body and if it is early or late stage. If it comes back positive they refer you for further testing to see where it is located. 

     

    GP keep telling me it is impossible for it to be cancer due to my bloods and tests as apparently i have had all tests however not had any answers. They are thinking it may be an autonomic dysfunction, chronic fatigue syndrome or fibrolmaygia but i just do not understand how my whole health could flip that quickly.