Worried Mom of 3

Hi Everyone

I have just joined the forum.

I just received news from my doctor today that my ca125 was elevated to 115. Eighteen months ago it was 40. He has now referred me for further investigations.

I am still very much in shock and afraid because 9 years ago my mother died of ovarian cancer at 74 years old. I am still suffering from the trauma of her death. I am 56 and my youngest is only 13 years old.

last year February, I had a spotting episode after not having a period for 20 months so I had several investigations done and they were all clear. However, the US scan showed that I had a little benign cyst on one of my ovaries. They said it was nothing to worry about and likely to disappear. I carried on with my life and remained healthy until 2 weeks ago when I started to have stomach cramps, then vomiting and diarrhoea. I put it down to a dodgy salad I ate the day before but the pain was unusually intense so went to the A&E. Gastroenteritis was diagnosed. Went back again when symptoms did not get better. They organised a CT scan. They said the CT scan only showed a tiny little stone in one of my kidneys but not an issue since all my tests were normal for kidneys. They said all internal organs looked ok. Conclusion: bad case of Gastro enteritis.

2 weeks in and I am much better but feeling a bit bloated so called doctors to request for further tests and mentioned ovarian cancer family history. Doctor now orders ca125 and full blood test that I did this morning.

Doctor called me 30 minutes ago to say ca125 has gone up from 40 (Feb 2020) to 115. platelet count has also gone up from 210 (April 2021) to 430. CRP is 15. They are referring me to a cancer hospital.

it is difficult to describe my emotions right now. Has anyone gone through a similar experience? Please get in touch. I am finding it difficult to process this information.

I look forward to hearing from someone.

 

Bukoba

 


 

 

 

 

  • Welcome to Cancer Chat, Bukoba.

    I'm sorry to hear that you're feeling uncomfortable and understandably worried about what these symptoms you have been experiencing could mean.

    We have other forum members here who will understand the emotions you're feeling right now and I hope some of them will stop by soon with words of advice and support. Until you get a reply feel free to join other conversations, everyone here is very friendly and I'm sure they will be happy to chat with you.

    The other thing I wanted to mention is that if you ever feel that speaking with someone medically trained might help, our lovely team of nurses are available on this phone number 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    I hope all turns out OK for you, Bukoba.

    Best wishes,

    Renata, Cancer Chat Moderator

     

  • Hi Renata

    Thank  you for getting in touch.

    Bukoba

     

     

     

  • Hi Bukoba 

    How are you doing? I hope you're ok  

    have you had more investigations to find out what's happening?

     I had a ca125 of 65 and a pelvic mass on one ovary. It could still be benign but who knows.  It's 20cm so open surgery is planned in next 2 weeks. 
     

    It's good to hear from anyone going through similar. 
    Take care