Hard lump behind child’s ear

I have posted before I think I just am really concenred. So last September we noticed a hard lump not overly huge on my child’s mastoid bone behind ear. Took her to the doctor who said gland. We left it then asked for an ultrasound and they said looks like a cyst. Got sent to ENT (not the one we wanted to see) she said leave it six months and didn’t check it. Called back and saw them six months later and she said now it isn’t a cyst but she also looked at the wrong ear and refused to let me correct her! So I was confused. The doctor then re did ultrasound and said the same as before it’s more than likely a cyst. And now in a month it has grown even bigger and it’s rock solid. She has a lump on the other ear same spot that moves and feels tiny and like a gland but the one on her left ear is a rock it’s does not move it is attached and is huge. What am I supposed to think have they misdiagnosed her? We see a new ENT soon but I’m so scared she has also lost a lot of weight. Can an ultrasound be wrong? Can a cyst grow quickly and be so hard?  

  • I'm really sorry for the worry this is causing Redbootz but fingers crossed the new ENT you're due to see will be able to answer your questions and put your mind at ease.

    If you'd like to talk things through with one of our nurses whilst you wait, you can give them a call on 0808 800 4040. Their phone lines are open Monday - Friday between 9a.m - 5p.m and they'll do all they can to help.

    Many of our members know how scary and stressful it can be when their little ones have had lumps appear so I'm sure some of them will be along soon to offer their support and advice.

    Kind regards,

    Steph, Cancer Chat Moderator

  • I’m sorry I didnt reply, thank you and thank you for the number. We had the appointment and the ENT said node and said give it a month and they may biopsy it. The doctor still says cyst. But now she has a node come up on her left supraclavicular area and I am not coping with the anxiety. She has nodes we can feel in her groin and she now has this small node in her clavicle area and I’m so scared. She has lost her appetite but she has been like that for a year now. She has grown but not put any weight on. 

     

    She did cut her lip and needed stitches 9 days ago, could that make it swell up in her clavical area? 

  • Hi! I'm so sorry you're feeling anxious and worried. 
    I have a 1 year old boy who for the last few months has been grabbing the back of his ears/ head and keeps poking around in there - it even wakes him. 
    He has just faught off a cold / infection and has a few swollen glands lumps on neck and behind other ear but this one is the same as your little one in terms of it's hard and dosent move.

    how are you getting on? I didn't know where to start but thank you for your post I will book in with gp to look at it 

    x best wishes x 

  • Sorry for the late reply. I hope that your boy is feeling better now. Have you managed to see a GP? If it was up before the cold then def best to get it looked at. We ended up in such a mess with what was going on but eventually we saw a hematologist/oncologist and he said all was ok. So just we need to monitor as she has just had a test with Public Health England as she was exposed to radiation that she shouldn't have been. It's such a worry when they are so little. Let me know how you get on at the GP hopefully all is well :) 

  • Hello! Just wondering if you got any further with this? My son (1 month) has exactly what you're describing. Only just discovered it so haven't seen a doctor yet but planning to mention it to the HV next week. Hope your LO is okay!

  • Hi Amyems and welcome to the forum.

    I noticed you were hoping to find out how Redbootz's little one is getting on.

    Unfortunately Redbootz hasn't been on the forum since May 2022 so there's a chance you may not hear back.

    I really hope that won't be the case, but if you don't receive a reply, you're welcome to reach out to others on more recent and/or active discussions you find about this on the forum or you can start your own.

    I hope your son is o.k and the lump is no cause for concern.

    Kind regards,

    Steph, Cancer Chat Moderator