High Grade CGIN

Hi,

I've been reading the posts on here and they have been so helpful but I feel like I need to write just to calm my mind.

I had my smear a couple of months ago and was asked to attend a colposcopy soon after as I had HPV and abnormal cell changes. I had a LLETZ at that appointment, which was uncomfortable (the speculum part, the actual LLETZ was surprisingly ok) and today had a follow up appointment where I was told I have high grade CGIN and that unfortunately the results of the LLETZ show they didn't get clear margins.

So, I have been advised to have another LLETZ and am now worrying that they still won't get everything and then the only option will be a hysterectomy. Is there anyone else out there that had to have a second LLETZ? If so, did you have the all clear afterwards? Or is there anyone who chose to have the hysterectomy as a preventative measure? Just knowing I'm not the only one (which in my head I already know) would really help. I'm 40 if that makes a difference. Thank you!

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  • Hello RiniBB and welcome to the forum.

    I'm sorry the lletz treatment was not successful on this occasion but fingers crossed the next one will be.  

    We have had quite a few posts about multiple lletz treatments within in the community so hopefully some of our members will pick up on your post and get back to you soon but if you feel it may help to talk things through with one of our cancer nurses, you're very welcome to give them a call on 0808 800 4040. Their phone lines are open Monday - Friday between 9a.m - 5p.m.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi Steph,

    Thank you for your reply. I think speaking to someone would be really helpful so thank you - so easy to catastrophize when you have only your own head to have the conversation with!

     

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