Hi Jen, 
I appreciate some time has passed since your post. I remember reading this forum when I was diagnosed 3.5 years ago in Australia. There didn't seem to to be a lot of information at the time - and I don't rememeber the discussion of hysterectomy - just regular monitoring. MRI was clear and regular bloods have been OK.

I had one pregnancy, one misscarriage that resulted in APSN. Then secondary infertility - I still wonder if not APSN related? Had to have IVF. Have a beautiful son - but it's been rough - again rare, he was a gastroschisis case - 90% go well - we fell into the rare again 10% complex case - our son lost 90% of his intestines, we spent 7 months inpatient in hospital and for the foreseeable future, his is TPN dependent, we are medical parents and it's a tough road.

We moved to the UK for our son and a cooler climate, and I've been transferred from an Australian trophoblastic team to London. Who have advised a hysterectomy - if our family is complete. Tough question! I'm 36 this year. Our embryos are in Aus. We have a tough life as is. And I've just been made aware of this 4 year mark... I feel so so lost and feel like this is just another heavy blow to our *** odds. We're torn about having another baby, but also just want to be grateful for our son, and focus our energy on him, and getting him better - and of course I want to be around for him!

Sorry for the rant - just wondering your outcome? As I really related to your post.  

Kate X

Hi Jen, 
I appreciate some time has passed since your post. I remember reading this forum when I was diagnosed 3.5 years ago in Australia. There didn't seem to to be a lot of information at the time - and I don't rememeber the discussion of hysterectomy - just regular monitoring. MRI was clear and regular bloods have been OK.

I had one pregnancy, one misscarriage that resulted in APSN. Then secondary infertility - I still wonder if not APSN related? Had to have IVF. Have a beautiful son - but it's been rough - again rare, he was a gastroschisis case - 90% go well - we fell into the rare again 10% complex case - our son lost 90% of his intestines, we spent 7 months inpatient in hospital and for the foreseeable future, his is TPN dependent, we are medical parents and it's a tough road.

We moved to the UK for our son and a cooler climate, and I've been transferred from an Australian trophoblastic team to London. Who have advised a hysterectomy - if our family is complete. Tough question! I'm 36 this year. Our embryos are in Aus. We have a tough life as is. And I've just been made aware of this 4 year mark... I feel so so lost and feel like this is just another heavy blow to our *** odds. We're torn about having another baby, but also just want to be grateful for our son, and focus our energy on him, and getting him better - and of course I want to be around for him!

Sorry for the rant - just wondering your outcome? As I really related to your post.  

Kate X