The unknown is the hardest. Why can't they find the primary?

Hi all, I'm sitting here lost and afraid. Nearly 4 weeks ago after my mother suffering terrible back pain since before Christmas what we thought was arthritis turned out to be spine metastases. She had to be told this at her GP surgery as no-one was expecting it to be this so there was no consultant dealing with her case.

The Gp sent my mum for a ct to find the primary to which she had 2 weeks later. My mother was also sent for a colonoscopy whereby that consultant informed my mum that he'd looked at her records and in his opinion colon caner didn't spread to the spine like hers has therefore didn't feel she required a colonoscopy,the same doctor explained that after looking on the ct scan that she had a larger mass in her left breast and under her armpit and referred her straight to the breast specialist immediately. After taking biopsies my mum was sent home. 

Her health started to decline more rapidly with loss of leg movement, memory loss, hallucinations and involuntary hand and body shakes. Yesterday after her GP did a blood test which came back as a dangerous high calcium levels. After admitting my mum last night, Today in the hospital the breast specialist has informed my mum that the biopsies taken 2 weeks ago from the breast and underarm have come back inconclusive. And said that they don't think thats where the primary cancer has originated. So now it's more test and biopsies of the breast and underarm and worse of all upto  a 2 week wait for the answers. This is the hardest bit as I feel all  we have done is sit and wait for answers whilst she suddenly declines as a rate of knots. 

Where on earth can the primary be?, And why is it being so difficult to get the answers that we are looking for? 

I know I'm probably sounding rude and inpatient but I'm just so frustrated and scared for my mother. 

Has anyone else ever been through this particular situation where its been 4 weeks since we got told its spine metastases but don't know where the primary is? Where can cancer spread from that possibly landed in the breast and spine? 

 

Thank you in advance for reading my post xxx 

  • Hi Emm7777,

    Welcome to Cancer Chat. I'm very sorry to hear of what you're currently going through with your mum. I can completely understand your frustrations and your questions - I can imagine this must all be worrying.

    I can see you have since posted again with an update so it sounds like you've found out more since your first post.

    No doubt there must be a lot of emotion and questions at the moment. It is cliched but take things a day - or an hour - at a time. Keep supporting your mum - even if all you can do is let her know you're there for her and to talk to her. Hopefully you'll be able to visit her more easily soon. And alongside this look after yourself too as no doubt this is all a shock.

    Hopefully you have others around you to talk to - either way, we're always here for support on this forum if you need it.

    And if you feel you need additional support at any point, do have a look at Macmillan and Maggie's who both have some good resources.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator