Pre diagnosis anxiety - 17 y/o son may have tumour on shin

My 17 year old son appears to have a tumour on his shin. 2 months ago his 15 year old brother was diagnosed with an osteochondroma - benign tumour that looks like a marble on his knee. He's still awaiting a specialist appt - for cursory monitoring. He had an X-ray, ct and mri so they were very thorough. My 17 year old has been experiencing pain and limping when running, walking upstairs and sometimes walking. He's been doing a lot of running without rest days and I assumed it was shin splints. Upon seeing a physio she said there's a lump on his bone which was unusual to her. She didn't feel it was muscular and suggested he might want to see his gp. My son said it was more of an afterthought and she didn't appear concerned. For a week or so he continued to rest his legs and do her suggested exercises - with no change to the bone. The lump cannot be seen but can be felt along his shin. 
We visited the gp who was excellent and said he needed an urgent X-ray which he had last week. The gp rang him the next day and said he needs an urgent referral to a bone specialist - bone cancer centre (not our local hospital), an urgent mri and urgent bloods. My 17 year old took the call alone and was shell shocked. We had no info. 
We spoke to the gp the next day and they explained the radiographer description is of concern - the tumour bone structure differed to the bone structure in other parts of the leg. 
I'm sick with worry. My 15 year old had tests over a couple of months whilst the process for my 17 year old is very different. He's had his bloods done, the next day, awaiting results. I'll be chasing up the appointment in a couple of days as per the clinical pathway guidance. 
My 15 year old is having his bloods monitored as he's had a few incidents of dizziness and collapsing and his lymphocytes were pretty low around a month ago. I'm now wondering whether his osteochondroma isn't as innocent as it appears. 
My two fit and healthy boys are now possibly experiencing illness, possibly serious illness and I'm beside myself. 
Any advice or reassurance will be gladly welcomed! Thank you for reading this far....

  • Hi, 

    Just wanted to share that I had a benign tumour on my calf, found in the exact same way back in 2018 when I was 27. I thought I had shin splints so I went to see a physio who found the lump and sent me to my GP immediately.

    It was wrapped around the head of my tibula. I had scans, tests and biopsies done and it was found to be totally benign. I was seen at an orthopedic hosital who were great. I had it removed and other than hobbling around for a month or two afterwards and some skin numbness, I haven't had any problems since then. I'm back to running, going to the gym, walking etc and I've just got a cool scar to show off now.

    It sounds like your kids are getting great care and chasing up appointments is always good! My Mum did the same for me! 

    My only advice is to avoid Googling symptoms and stuff. The info you'll find is mostly old, incorrect, wrong or irrelevant so it's best avoided I've found. 

  • Hi, 

    Thanks so much for sharing your experience and I'm so glad you recovered from that. I totally agree that googling can be the worst thing as we can assume we're doctors and go to catastrophising the worst case scenario. 
    It's really helped me to hear of other benign tumours that are investigated as possibly being more sinister. 
    He's got his blood results tomorrow and his MRI next week. They keep ringing him with lots of info though and he's not taking it in! He's trying to revise for his current exams and they're stressing him out. I've said he has to give permission to the medical professionals to talk to us if he wants them to call us with details. 
    I'm feeling a lot more hopeful right now