I was urgent reffered to an haematologist about my lymph nodes which have been swollen / enlarged now for 5 months. I have some in my neck, one behind my right ear, one below my right collarbone, either side of my groin but a slightly larger one on the left side, I also have a tiny lump behind my left knee on the outer side and I am not sure if it was lump or just fatty tissue but there's one right behind my knee.
I was urgent referred by haematologist for an ultrasound, but just on my neck and groin, not behind my knee even though I mentioned it.
My scan was the 23rd May-
When I got there I asked if they was scanning behind my knee and they said because they wasn't told to they can't scan anything which they haven't been told by the haematologist.
He scanned my neck first and then went to my groin and then went back to my neck and collarbone and did that more thoroughly. My mom asked him what he thought and he said he could not say much but he said they didn't necessarily look too enlarged and they felt more prominent because of me being slim. He said I would hear back for the results within 2 weeks.
I got my letter through the post Thursday (3rd June) saying that I have a haematology phone appointment regarding my ultrasound results on the 24th June, so this is 4 weeks and 4 days since my ultrasound, I'm just wondering why is it so long away and if it was something serious would they have gotten in touch with me sooner about the results?
I also have a follow up appointment on the 9th June at the skin centre with the dermatologist about my moles as I just want them checked and removed if possible because I know some did change but only realised recently but when I went last year they still said they looked fine apart from the one they said they was going to remove but didn't end up removing it. I am going to mention my lymph nodes to them too.
I am just worried that the ultrasound won't pick up anything and they will just say they look fine, but surely not if they have been enlarged now for 5 months and they won't know for sure without a biopsy so I am hoping they biopsy the lymph nodes but then I am worried that it will come bwck with bad news and same goes with my moles I am scared they will biopsy my mole and it will come back bad as well.
I just keep worrying that they are linked together, my moles and my lymph nodes.
I do suffer with anxiety and health anxiety and at the time I was convinced I had lymphoma I was actually making my self itch because now lymphoma isn't the top cancer I am worrying about I haven't been itchy or even felt itchy it's only when I start thinking about it and convincing myself I have it that it comes back, so I think that my health anxiety was actually causing physical symptoms.
I also have parosmia - which is a long covid symptom. It is a change in smell and taste and it makes eveything smell and taste distorted like rotten and a covid taste so I have lost my appetite due to that. I'm not 100% sure I have covid but at the time - in November last year I was in contact with both my mom and boyfriend who had covid at the time and I actually lost my smell at the time too but didn't take a test as I self Isolated so think I had a very minor or asymptomatic case. My health anxiety keeps telling me that I have developed parosmia because I have a brain tumour and it has damaged my olfactory system.
I keep reading that collarbone lumps are always cancerous, any change to a mole is cancerous and lymph nodes which have been present for months are cancerous.