I have not been feeling well for 10-15 years. I have had 'fibromyalia' & 'palindromic rheumatoid arthritus' banded about as 'diagnoses' but never felt like they fit with my symptoms. I have 'flare ups' with fingers, hands, or knees swelling up, like as if the skin will burst. Tiredness bordering on narcolepsy.
For the last 3-4 years or maybe more, its hard to remember I have been running a fever. 37.2 every morning, and 38 by the evening, every single day. That in itself makes me feel rough. Then the breathlessness has got progressively worse. I do daily walking, and weekly yoga. I went on to HRT Dec 2019. I was supposed to be monitored, but covid happened. I have steadily gained weight ever since. During the last year, after contracting something horrid in March 2020, which was probably CV19, I have never been the same. I have become unable to function. I have not had any supoort from GP's. I feel like I am on a conveyor belt. Never have enough time to tell them what's wrong, never mind have them give me a diagnosis.
I has got to the point, where I don't feel anyone has the time to care what is wrong with anyone.
I have gone private a couple of times, and found that an altogether different experience. I can't really afford it. But what price can you put on health - right?
I have recently, out of desperation, put my symptoms and my results into a symptom checker called "Isabel" and AI tool which apparently even the Doctors use. It gave me the diagnosis of Lymphoma - Hodgkin or Non-Hodgking or Burkitt. I went to see the Lymphoma specialist the site recommended. He spent an hour talking with me, and examining me, and ordered a full body CT scan... I am now waiting for the results.