Hello, I'm really sorry to hear about your symptoms and I don't have any advice for you.. I'm going through a very similar situation and just wanted to see what others replied.. I hope you are doing well apart from the obvious ️

I have endometriosis and endometriomas are not usually cancerous - do they think yours looks suspicious for some reason? 

They said they thought it was an endometrioma but it needed further investigation and they ordered an urgent MRI. I don't know if my family history might play a factor as there is a history of breast cancer and other cancers. 

im just finding the waiting hard and I'm not sure what I will find out from the MRI or whether I might still need a biopsy?

These investigations have been going on since December and I've not yet seen a consultant, feel a bit lost about it all.

I can only speak from my mums experience - she had endometrial sarcoma. They can get a strong indication from the MRI and decide whether or not to operate to remove. Final diagnosis comes from pathology when they analyse the tissue they have removed. First time with my mum they thought it was a benign tumor but needed to be removed regardless as it was quite large; five days of pathology later they said it was malignant in places. Second time (12 years later) they were quite sure from the MRI that it was malignant. I'm not a doctor but it sounds like they are being very cautious in your case as it's an endometrioma at first glance. Maybe it's a larger one so they want to take a closer look. 

Btw five months is very long. Once thing I've learned though is that if they are really worried they will rush it through. With my mum it all moved at lightening speed. 

Thankyou for that information and I'm so sorry about your Mum and also for your own experience with these concerns. Hope you have a positive outcome Mrs Gooner.

it was actually repeated UTI infections in December and a blood test showed up something with my liver function that needed to be monitored it was GGT levels. In Feb it was repeated and was very high, I've also been having acid indigestion struggling to swallow my food, it was that point the CA125 was tested so it's only really been since Feb. Every scan had been ordered urgently but there is such a backlog due to COVID. My first urgent ultrasound took 4 weeks for me to be booked in and then another 2 weeks for a call. Thankfully the urgent MRI I was warned may be another 4 week wait but the appointment came in 2 and now they've warned up to a 3 week backlog even for urgent scans.

I had a hysterectomy postponed last year which was scheduled due to Fibroids but postponed due to Covid, it's now going to be at least another year for the op. It's no one's fault and the hospital staff are working so hard, I just feel a bit anxious about the time taken to get a clear diagnosis as every day my symptoms get worse. I have 3 children and I feel like I'm being a rubbish wife and mum right now.

Im so sorry for the outpouring, I'm sure there are so many people in this group with much more challenging situations.

thanks again x

Oh my goodness. I had no idea it was such a long wait for all of this these days. It's awful for you and I totally understand your fears that your underlying condition might be getting worse. My mother went to urgent care once or twice as her abdominal discomfort became quite severe (turns out the tumor was blocking her bowl) so you could consider that. They did all the investigations there. I have no idea what else to suggest other than paying privately if that is at all affordable. I don't know where you are located but I actually went for a check up abdominal and pelvic ultrasound yesterday at a clinic in London and it was all done quickly and efficiently. But I happen to have some insurance so I know it's easy for me to suggest and may not be workable for you. 

Bless you Thankyou, definitely something to consider.

Thankfully I have had a call from the hospital today, to come and see the consultant this afternoon. My husband is coming with me, so hoping and praying for a breakthrough with the diagnosis.

it's nice having someone to talk to so Thankyou for replying.