Breast lump - Clinic app tomorrow, any hints or tips?

Hi 

First post, sorry it's a bit long!

Bit of context, I'm 29 and found a pretty large lump last weekend, its above my right nipple and feels long and a bit bobbly on the surface of it but feels solid in itself (if that makes sense?!) and fairly deep. I called the GP and was asked to come in that afternoon (Monday 10th) for her to check it out. I got the distinct impression she wasn't concerned, right up until she was examining my right breast and said she could feel the lump I'd mentioned, and after checking my armpit she said she was going to be making an urgent referral to the Breast Clinic under the suspected cancer pathway. I was still laying down and topless so caught me a bit off guard! When I was dressed she gave me a brief explanation of what the pathway was and what the Breast Clinic referral would involve. I thought GP's were notoriously ambiguous at this stage as it can be difficult to tell a fibroadenoma from cancer from a cyst - but she didn't mention any of the other options for what it could be.

I've got the Breast Clinic appointment tomorrow afternoon, and have been trying to keep a level head about it, it's not cancer until you're told it's cancer and all that. I wanted to ask you lovely lot if you wouldn't mind sharing:

1) How do you keep things ticking over and keep sane when there are weeks or months between appointments? I have two kids under 5, but have been so forgetful and distracted and it's only been a week ‍♀️

2) what questions are helpful to ask once you've had the ultrasound/mammogram (maybe biopsy)? Are they likely to give an indication during or after the tests or are they likely to remain tight lipped until biopsy/tests come back? I'll be going to the appointment on my own as partner can't get time off work.. (not sure if he would be allowed in anyway with Covid but doesn't feel like he tried very hard at getting time off... but that's another story!)

Will post an update after the Clinic appointment, but any advice for the appointment (or what to take with me) would be really appreciated!

TIA

  • Hi Sarah

    Thank you for coming back to me it is so appreciated. I think I lived in a bubble too as to how many people are going through this process.

    I was advised on the 15th April & it was suggested the best thing was to go for a masectomy, but that all seemed so radical to me (in fact after the word masectomy not sure I took anything else in from that appointment). Of course they allow u to explore your options so I went back & forth between lumpectomy & masectomy, finally deciding on masectomy on the 5th May. I was told then I would have my date by the 11th May. That date came & went with no date, I have emailed the Consultants Secretary but had no reply. I am checking my emails/phone all the time. I just need a date so much. Totally understand lots of people waiting for surgery.

    Wish now I had accepted masectomy & didnt go back & forth as I may be further forward. 

    I am finding this worse than being told I have breast cancer. Well meaning people keep asking if I have my date too. I also worry the lump feels bigger.

    Dont know what I would do without the support of people on this forum.

    I wish you luck on your journey through this, the 8th June will be here before you know it.

     

    Keep in touch xxx

  • I have friend requested you. We can always message on there too xxxx 

  • Do you have a designated breast care nurse? 
     

    Message me and we can go through stuff xx 

  • Glad to read appointment went OK I  would call the breast clinic for advice going forward. 

    I didnt take a book or drink but was offered water. I was in and out of rooms so probably would of read same line over and over lol. 

    Best wishes

    Louise 

  • Hi I would call the breast clinic up fir an update on your surgery.

    I was lucky when I saw my consultant for my 1st results he gave me surgery date and nurse gave me pre op date, and the breast injection date before I left all I had to wait for was call for covid test.

    Hope you hear soon.

    Louise