Breast lump - Clinic app tomorrow, any hints or tips?

Hi 

First post, sorry it's a bit long!

Bit of context, I'm 29 and found a pretty large lump last weekend, its above my right nipple and feels long and a bit bobbly on the surface of it but feels solid in itself (if that makes sense?!) and fairly deep. I called the GP and was asked to come in that afternoon (Monday 10th) for her to check it out. I got the distinct impression she wasn't concerned, right up until she was examining my right breast and said she could feel the lump I'd mentioned, and after checking my armpit she said she was going to be making an urgent referral to the Breast Clinic under the suspected cancer pathway. I was still laying down and topless so caught me a bit off guard! When I was dressed she gave me a brief explanation of what the pathway was and what the Breast Clinic referral would involve. I thought GP's were notoriously ambiguous at this stage as it can be difficult to tell a fibroadenoma from cancer from a cyst - but she didn't mention any of the other options for what it could be.

I've got the Breast Clinic appointment tomorrow afternoon, and have been trying to keep a level head about it, it's not cancer until you're told it's cancer and all that. I wanted to ask you lovely lot if you wouldn't mind sharing:

1) How do you keep things ticking over and keep sane when there are weeks or months between appointments? I have two kids under 5, but have been so forgetful and distracted and it's only been a week ‍♀️

2) what questions are helpful to ask once you've had the ultrasound/mammogram (maybe biopsy)? Are they likely to give an indication during or after the tests or are they likely to remain tight lipped until biopsy/tests come back? I'll be going to the appointment on my own as partner can't get time off work.. (not sure if he would be allowed in anyway with Covid but doesn't feel like he tried very hard at getting time off... but that's another story!)

Will post an update after the Clinic appointment, but any advice for the appointment (or what to take with me) would be really appreciated!

TIA

Parents
  • Hi Honey

    You sound so practical and pro-active

    Re your appointment. I wasn't able to take anyone to my initial app. Due to COVID obvs

    It was really straightforward though and all staff I came into contact with were great and explained exactly what they were doing. 
     

    I had an initial examination by a nurse. I then had a mammogram. Then another one as the Dr wanted more info re my left boob. I then had an ultrasound. In relation to your (tight lipped) question ... Dr initially located some cysts. She showed me on the screen. She also located a lump buried amongst them (not ideal I was thinking). I asked her if she was concerned and she said that due to way it was 'presenting' she was concerned. She showed me that too. She then took a biopsy. She said she was unable to diagnose exactly what it was until biopsy was analysed. She was very professional and I thought as honest as she could be at that stage. She couldn't see anything in my lymph nodes that lead her to want to biopsy those at that time. 
     

    I took a book with me as wasn't sure how long I'd be waiting around. Although I was there for about 3hrs I didn't feel like I was waiting around. 
     

    The whole experience itself wasn't bad at all. It was the wait for the results that was hideous. My clinic has a 2 week turn around. I was advised to take someone with me for my results. I don't currently have a husband/partner so took my friend. I kinda knew that the results wouldn't be great. However so many people go for these tests and the results are all fine. Cysts etc. It's more common to have a positive result than a nasty one. Definitely keep that forefront in your mind honey My GP said only 1 in 8 tests are positive for  cancer.
     

    I saw the consultant when I went back. Unfortunately he confirmed what I'd thought. But it's treatable. That's all I wanted to hear  My treatment starts with an operation on 8th June. I feel really positive at mo - I have two teenage boys and when I tell them (nearer to hospital app) I have nothing but positive facts to relay. 
     

    I didn't get the best news. But please please remember, that's not always the case. Far from it. I hope it all goes smoothly for you tomorrow. Sarah xxx  

  • Thank you for your messages, it's good to know they're likely to talk through at least parts of it. It's the not knowing that is the most difficult, my mum's mum died from breast cancer when she was in her 50's, I was fairly young at the time and don't really know the ins and outs of it - but I can't find out from my mum without telling her why I'm asking (I don't want to tell her until I know there's something to tell). I was thinking about taking my work laptop to pass the time but a book is probably a much better idea! 

    thank you

  • Totally understand re not telling people stuff unless you have to! They likely worry more than we do. And we worry a lot! 
     

    Take a book. You may not need it. Just remember ... All will be ok. Regardless of the outcome (which could be absolutely fine)  all will be ok xxx 
     

     

Reply Children
  • Hi,

    Just an update on my clinic appointment today

    Saw a doctor for a physical exam, he had a feel and marked the lump but said he thought it was cysts. He said he'd send me for an ultrasound but he didn't expect to see me again so that was reassuring.

    During the ultrasound the lady said she couldn't see any lumps either in the breast or in the armpit, nothing at all. She said it must just be a patch of extremely dense tissue, but she did say the dense breast tissue had extended much further than normal into my armpit which she said explained the dull ache.

    I can still feel a pronounced lump, it's a good 3-4cm and not smooth - and although I feel a bit better that they couldn't see anything obviously cancer - I can't help shaking the feeling that there's something more going on there than just thick tissue. Has anyone else had something similar?

    If the breast tissue is that dense it feels like a solid lump and is not going to go away, how can I do any self-checks with any hope of finding anything? I'm too young to be getting annual scans as routine, is that something I can ask for does anyone know?

    TIA

    P.s taking a physical book was a really good distraction so thanks for the tip :). Not sure if it's the same process in all clinics but once you're in the clinic, you're in until you're done and wasn't allowed to nip out to get a drink (really wanted a cup of tea!) from the canteen. I get the rationale so not complaining at all just in case that helps anyone else, I was so glad I'd take a bottle of water with me

  • Hey Honey.  
     

    Firstly, I am so pleased to hear you had positive news. That's so so good. 

    Secondly, I'm glad the book option helped :))

    Thirdly, I am sorry to hear you still feel anxious. I'm not sure re regular checks etc  Can totally understand your point though. Makes you feel a little helpless re finding anything yourself in the future. You could ask the nurses on here? They may be able to advise you on this. I'm sure they will have encountered this type of concern before  

     

    Sarah xxx 

     

     

     

  • Glad to read appointment went OK I  would call the breast clinic for advice going forward. 

    I didnt take a book or drink but was offered water. I was in and out of rooms so probably would of read same line over and over lol. 

    Best wishes

    Louise