Hello

 I hope you are ok. I am also waiting for an ultrasound as I have a lymph node that has come up. It took me a long time to get a GP to even see it! 
 

I have noticed mine since my covid vaccine and mentioned this but the Dr didn't seem too fussed which has made me anxious but the more I am digging on the web the more I see.

mine is on my left collarbone. 
 

I have a scan booked for 01 June but the wait it making mine worse.

I haven't really helped but wanted to say I feel the same and I also think the more I prod the more it is there. It seems to be quite common? 
 

X

Hi,

Thanks for your reply, It helps to know someone's in the same boat and we're both hopfully stressing over nothing. As you say they do seem to be quite common from what I've read? My Dr said it could never go down and they kind of build up scar tissue and just stay bigger like that sometimes and that's how mine feels. I'm just worried she was trying to be nice and stop me stressing til the ultrasound incase it's bad news or needs more tests. Have you had any symptoms with it?
 

I also noticed mine about 5 days after my first Covid jab but when I mentioned it to my Dr she said because it's on my neck it's not linked to the area of the body where I'd have had it. I've read that the collar bone could be linked to the jab tho for you. 
 

It's been aching round my neck/head/shoulder the last couple of days again but I think this must be me touching it cause it did it in the beginning when I first noticed the lump. Again finding a couple more bumps that could just be normal but I've been looking for them and not helped myself. I just want this ultrasound to hurry up cause I've got myself worked up again and it's stopping me sleeping and making me paranoid I have other symptoms when they're probably not linked or just in my head.

I also keep googling things even tho I know what it'll say, I know I'll get no new information from what I've already searched except scary stuff. You know not to read it but you can't help looking.

I hope your scan goes well and I'll update after mines done. Hope they can reassure me on the day as I know lots do wait for your dr to talk to you.

X

Hello

My GP said that it looks like a reactive node. Mine probably due to my covid vaccine. There seems to be a lot of US press reporting on this but not so much UK.

perhaps yours could be a reactive node from another illness? There are quite a few posts like this and some in the neck and some in the collarbone. 
 

I have days where I stress so much and then others when I think to myself my GP doesn't seem stressed so I need to take comfort in that. Could you too? Also I think there is a duty of care that if there is anything that may be more serious there is a 2 week referral (don't quote me on that in case I have misunderstood). I was offered 26 May but am away with my sons which has since added another week to my waiting time.

It took everything for the GP to even see me, I had a telephone appt first of all and he said to me, what is the point in me seeing you as all I am going to tell you is that there is a lump. I couldn't quite believe their attitude.

I am here anytime you want to talk, stay strong.

X

I'm sorry it took you so long to get anyone to help you at yours GP, they sound pretty unprofessional to have that attitude when someone is asking for help. I spoke to mine almost straight after noticing it also on a phone consultation but they said they wouldn't see me until originally 3 weeks but when I called as they requested then they told me to wait 6 weeks. She did see me at that point and booked my ultrasound for 4 weeks later. I think you're correct and it's a 2 week wait if they think it's anything serious. 

I know you're right, I had a stern chat with myself when I was stressing a lot when I first found the lump and I managed to put it out of my mind for a good few weeks. I told myself that good or bad I can't change anything so just get on with things, stop googling and I also went away for a week with my partner and our little boy so that helped a lot. It's just brought all the feelings and worry back since seeing the dr again. I'll try my best to forget about it again for the next few weeks until my ultrasound appointment.

It does help to talk it over with someone, my boyfriend is supportive but really doesn't get stressed like I do so I dont think he understands and thinks I'm just overreacting - he's probably right in some sense. Just wish it was easier to put it out of my mind! Thanks so much x

I am a natural born worrier and I let things play on my mind so totally know where you are coming from. People I have spoken to about this say oh don't worry but I think if they were in my shoes they would and them saying it makes it worse as you think am I being OTT and then you worry about that on top of everything else.

I also think it is the not knowing, whatever the diagnosis we will have to try and deal but it is the not knowing.

I am totally same as you and always think the worst etc but mostly it isn't.

x

Yes I'm exactly the same and I keep it all to myself mostly because I know the response I'll get from people. I do wish I was one of these people that can brush everything off! And you're right it's the not knowing that makes it worse. 
 

Just have to do my best to put it out my mind as much as possible. You seem much more sensible than me so I hope you're not worrying too much!

Fingers crossed in a few weeks I can update saying all is normal x

Hi,

Last November my 6yr old had viral tonsillitis, 2 nodes came up on the right side of his neck. They're still here now. He's had blood tests and ultra sound and all came back clear. The Dr said his lumps were benign.

I then noticed I had one behind my ear but also noticed it a year prior to thag, it was hard and didn't move much. Had bloods. Chest x ray etc and all came back fine too.

I think any lumps should definitely be checked but I do believe a lot of them are usually no cause of concern. All I was told was to keep an eye on them and as long as they don't start growing they're fine.

Good luck. Let us know how you get on :) x

Thanks so much for your reply!
 

I also had two hard lumps come up behind my ear last year that took about 3/4 weeks to go away it's just that this one has stuck around so long is worrying me. It does help to read they can just come up and be perfectly harmless, I've read a few similar stories and I know it's rare for it to be anything very serious. Just can't help worrying and can't wait for this ultrasound to be out the way now!

I'll update once I know more after the 26th x

Hi Lisa2007,

I hope you don't mind me writing, just saw your post.

I'm hoping that you are all ok since your post xx

It sounds as though i have the same as you.
Swollen gland in my neck, which i noticed approx 2 weeks after my 2nd vaccination.
The doc has done my bloods (all fine) and has me booked in for a scan which i've getting in a right state about! But my doc never asked or referred to the vaccine link, and i've only just found out about it.

I think anxiety has been making this worse, burning neck, tingling, unable to sleep etc. It's hard to know if it's in your head, or real.

xx

Hi there! Hope you're ok, it's a horrible thing when you're worrying about your health.
 

Thankfully I had my scan and the dr wasn't worried at all. He said it looked normal and to just get in touch if it ever changed. I still have the small lump on my neck and some days it's barely there and maybe some I feel it slightly more but I'm not worried about it, it's not any bigger which is good. 
 

I asked my dr about the link between it and the vaccine and she says it couldn't be linked to that spot in my neck because that area drains lymphatic fluid from the head area. If it was because of the vaccine it would be a lump under the armpit or on the collarbone i believe.

I know how awful it is to be constantly thinking about it and worrying, I got myself in such a state running up to my scan. I convinced myself it was awful and thought there were all sorts of other symptoms that must be linked but looking back it was definitely my anxiety causing them. Now I barely think about it and am trying my best to keep my anxiety at bay! I think a hard year with covid realky ramped things up for me.

It seems impossible but try not to overthink or worry too much. It could all be over nothing like mine was and I do hope your scan comes quickly and the outcome I'm sure will be the same as mine and you'll find some peace at last! 
 

All the best! Xx