Hi Eleanor66

I have has a similar experience I was diagnosed with cervical cancer 1B1 and had a hysterectomy. 

I had a reoccurrence in my ovaries - the only thing they left in and was also told I was 'incurable'. However my oncologist said it could be controlled, which is a much better word. It may be controlled for the next 20 years no-one can tell you as everyone is different.

I'm currently going through chemotherapy to gain control, the chemotherapy is manageable, it will probably be the same one they put you on which is carbo/taxol as they use it for all gynecological cancers.

Try not to worry, I know its easier said than done as I spent days on Google thinking the worst too.

X

Hi Giggsy, I am sorry for your illness, thank you for your kind words and good sense.

I am feeling more level today, had bloods taken and will now wait for monday. My GP also calmed me down somewhat by reminding me that they have only seen things on the scan which need investigation and not given me a formal diagnosis (even if it feel like one) we shall see. Yes, I am anticipating more chemo- I have had carbo/taxel before and it was tolerable for me last time. Fingers crossed for us both, wishing you well xx

Hello Giggsy

Hope you are well   I read your post with interest 

my lovely mummy also has a recurrence of endometrial cancer   She is having 6 cycles of chemo and has completed 2 cycles already.... 4 more to go

how are you doing? I also googled and scared myself silly   My mums has spread to her lymph nodes and para ortic lymph nodes

hope you are well

sending you lots of love xxxx

I'm sorry about your mum.

How is she coping with the chemo?

I have number 4 tomorrow. Everyone responds differently to chemo but some tips are below. 

I found I was constipated for the first few days and used senna tablets to help. I also experience insomnia with fatigue whilst I'm on the steriods, so if you can help your mum with cooking meals and cleaning. I eat 3 healthy meals every day even when my mouth is sore, I'm not sure if she can eat but I found this helped my recovery and blood count,  also going out every day for a walk, but if she can't manage it just sitting in the sun.

I bought a ems mat for the peripheral neuropathy and have been going for reflexology now its reopened. 

Im not sure what treatment your mum had originally but radiotherapy may be also used on the lymph nodes in conjuction with the chemotherapy.  I had a lot of my lymph nodes removed originally.

I know its difficult for you but try and be positive when you see your mum that will help her enormously, my mum kept crying when I saw her which didn't help. I just want people to treat my normally. It's nice to have conversations that don't involve cancer its a long 5 months anyway, maybe plan something nice for 5 weeks after her last chemo

X

Thank you Giggsy for your lovely post

i met mum yesterday in the garden and looked well and chatty  She's having her third chemo on Thursday.  She does get very exhausted in the first week but then picks up in the second week and then feels better in the third week....

she's planning to do things a bit different this time... the side effects really hit hard from Saturday to Wednesday (after receiving chemo on the Thursday) she's found...so, she's going to literally rest in bed as much as she can from Saturday to Thursday . in the last two cycles she's tried to potter around but she found it exhausted her.... plus her eyes were affected last time ... thankfully temporary...

if you don't mind me asking do you have the nasty cells in your lymph nodes?

At the moment mum has it in lymph nodes only ....it's a recurrence and she had a hysterectomy and radiatherphy first time round .... so not sure if she can have radiotherapy again...

we all show a very positive front to mum and I agree .... I think it helps a lot 

good luck with your next cycle.  I know you will soldier through and beat this thing xxxx ️ ️ ️ ️

Dear Giggsy 

will do.  Thank you for the tip

will keep you posted 

sending you lots and lots of good wishes xx ♥️♥️

Hello Elenor

how are you? I read your posts above so thought I'd reach out. My mums also tacking a recurrence of endometrial cancer in her lymph nodes...

having chemo and we very much hoping for the best

sending you lots of love xxxx

Hello Hope, thank you so much for asking after me - I am currently waiting for an MRI on 25th, which will hopefully confirm that there is nothing worrying going on. I'd seen my oncologist after the blood tests and she was quite reassuring- she rolled her eyes at the doctor who'd given me the news at the PET scan. I live in France and here it is usual to be given your results (or at least an approximation of results) straight after the scan. These results are quite often exaggerated or plain wrong- so I am learning, I really should know better after 11 years in cancer-world. I have been instructed to block my ears after the MRI (!) and report back to the onco. As she said "we panic when I say we panic, not before" 

I am so sorry to hear of your mum's cancer, I hope they'll manage to flush it out again- these things can be held at bay for many long years. I believe you can have more radiotherapy- provided it is not in the same place as before. Staying positive for mum is very good, also try to stay 'normal', without ignoring what is going on of course. For me, when I have been very ill, I have always been comforted by people chatting on about the normal things- not being all hushed and tiptoeing around me. Wishing you, mum and family every strength and positive thoughts aplenty, Love Eleanor xx

Dear Eleanor

Thank you for your lovely message

wishing you lots of luck for 25th.  I'm sure it's nothing and he can then just forget about it all
 

mum is ok touchwood.. we all not talking about it and continuing as normal for mum and dad but sometimes the three of us (three sisters) have a wobble about it all but never in front of mum and dad

Mums had her first progress scan on Wednesday.  I think she gets feedback on the scan next Wednesday.   She's only halfway through her chemo and we are desperately hoping it shows that the cells are being banished away

sending you lots and lots of love and best wishes xxxx ️ ️ ️ ️