Hey ive seen lots of posts on this site which all seem so supportive.
Im a 31 year old guy, history of smoking, physical therapy clinic owner.
So my story so far, feb 2021 noticed a lump aboive my left collar bone, non tender (thought nothing of it as nodes swell for all sorts of reasons) and I felt fine and healthy
.
Booked an appoinment with the GP as after a few weeks didnt see it shrink. GP seemed concerend and then took my temp and apparently it was high 38.5 and she understandably thought Covid - this was ruled out - I did explain to her I work in healthcare and get tested twice a week. I monitered my temp since then so nearly 8 weeks now and have a low grade temp most evenings but fine in the day time. I also noticed some night sweats which I had put down to a super hot bedroom, crazy fatigue and the newest symptoms being itchiness in my legs and arms.
They referred me for an ultrasound and bloods, bloods showed a drop in platelets and ultrasound said urgent hospital refferal needed for futher investigation. Gp put me on the urgent 2 week refferal.
Prior to all of this while I was putting all of these symptoms togther i decided to go and get a private CT scan of my abdomen and pelvis as they drain to the left supra claviaur nodes, ive also been exepericing some abdominal pain for quite a while which drs thought was IBS - this came back as enalrged lymph nodes all over my abdomen and pelvis and the private consultant wrote in his report - Highly susposious of underlying lymphoma - obvs ive been freaking out since.
Luckily I got this private report and CD back last friday and just in time as then I saw the haematology consultant this Monday who sent me for a CT scan of my chest which I had yesterday. He was a nice guy but quite stoic and I think wearing a mask always makes these interactions slighly more akward as its hard to read face expresions or gather tone.
The consultant said he wants the NHS radiology team to look at my private scans of my abdo and pelvis and the new CT scan of my chest to find the best place to biopsy. I imagine ill have the biopsy in the next two weeks sometime - I have an appoitmenrt booked with him on the 10th of next month.
I feel like the not knowing is the worst bit, the unknown - I just want to know whats going on either way. But this anxiety is making me feel so much worse and a little hopeless! My Mum and my gradnmas all had cancer - none lymphoma but I cared for all of them during there treatments - we have been through this and like I said this part is the worse the not knowing!
(Okay now time to breathe lol)
