Hi Veronika and welcome to the forum.

I know it's difficult but try not to overthink the speed of your appointment as there could be many reasons why they're able to see you so soon; the department being up to date with everything and a cancellation slot becoming available are two that spring to mind straight away. If you can, try and see it as a positive as it will mean you will have less time to wait to find out the results.

Hopefully some of our members who have been in a similar situation will be along soon to offer their thoughts and advice but in the meantime, we're thinking of you and wishing you well for tomorrow.

Kind regards,

Steph, Cancer Chat Moderator

Thank you for the support!

So I had my CT scan last night. Now I have to wait for the result to come back. Meantime I asked my GPsome information as I never been told what's going on. This is what's she came back with:
" Your first Xray showed some changes in your lungs keeping with infection, so they advised to repeat Xray in several weeks.
 The second Xray showed still some changes in lungs but it was difficult to identify what exactly were these changes so CT scan was arranged which is more accurate investigation." 

This did not calm my nerves! I guess I can expect further testing.  

So here is an update, noone has commented on my thread but I keep posting updates might help someone one day.

5 days after CT scan I had phone call from GP. They are suspecting I have sarcoidosis will refer to PET scan. This is all I get from her. 2days latter, today I received a letter. The wording isn't great. I read the first line and i broke. I had to read a few times to understand what it say. This is the letter.
"You have been referred to Respiratory Medicine as a potential cancer patient.
 You had a CT scan chest carried out on the 15th of April which has been reported as not showing any evidence of malignant lung tumour however CT findings are consistent with a lung condition called sarcoidosis which on some occasions (not always) requires medical treatment. In view to be reviewed in the next available of this there will be arrangements made for you to be reviewed with the next available Respiratory Outpatients Clinic. You have been taken off the lung cancer pathway."

Good news they don't think it's cancer. Bad news there're no cure for sarcoidosis it will go away... or not 

I'll update after PET scan

Hello

I wanted to let you know that I was diagnosed with sarcoidosis when I was 31.  I will be 64 in June.  This happened after the birth of my 4th child.  It is a long time ago so I do not recall all of the details.  My blood tests were showing inflammation.  My legs had red Mark's going up the front of shins.  These were called earthyma nodosum.

I was experiencing dreadful night sweats.  When I woke in the morning I was so stiff and sore that it would take me  a long time to be able to get out of bed.  I was unable to bottle feed my son.  As I moved around over time I felt stiff and sore and very nauseous. I had to attend for  xray.  This showed fleshy growths in my lungs.  The treatment is sometimes steroids but I managed without.  My doctor told me the condition could persist, but Ì was lucky.  It was gone after 9 months.

Good news that it's not cancer Veronika. 

I've been following your thread (apologies I should have posted, but sometimes it's is difficult to know what to say).

Hopefully they can do something about the sarcoidosis and manage as a chronic condition if need be. 

Please do post an update. 

When other threads just stop abruptly it's difficult to interpret as whether good news or not.

Good luck for the PET scan etc.

Dear Celticlass,

Thank you for sharing your experience! I'm hoping I will be as lucky as you were and I can recover quickly.

I had sweaty nights but I have put down as the side effect of my antidepressants which I started not long before I noticed the breathing issues. I know something was going on but covid came and I was scared to tell my doctor that I'm coughing. I knew its was not covid but their first thought would have been that I'm Covid positive...

I do experience the stiffness in the morning, specially my legs and my back. Is that really could be in relation to sarcoidosis?

I don't have scan marks , thanks God!

Hopefully I'll hear from doctors soon.

Thank you for your post!

Take care xxx

Hi donzx,

Thank you for your reply! 

I will definitely post when I have news! 

Take care!

Hi, 

quick update. Still waiting for PET appointment and for the respiratory clinic to contact me. Nothing happend yet. I'm really frustrated now. More and more wait.. 

I'll update as soon as I can.

Take care you lot!

xxx