Supraclavicular Lymph Node.. Worried!!!!

Hello All, 

I recently had my covid vaccine - I noticed my shoulder / collarbone was sensitive when I touched it a day after I noticed I had a small, moveable, lump. 
 

I spoke to the GP on the phone (because of covid) she said it's likely a lymph node from the jab. I went away and still wasn't happy as no one saw me... so I called back and spoke to a different GP... she didn't sound worried either, but called me in... I saw her, she felt it and didn't blink an eye lid... but said she would give me a blood test for peace of mind. 
 

I rang back to get the results and spoke to a further GP... my blood tests were completely normal.... I explained it to him too and he also didn't seem like he was concerned. 
 

I work at a private hospital, so went to see a consultant dermatologist on his lunch break ( he has had a special interest in lumps and bumps for 28 years ) - he wasn't worried, said it was small like a little finger tip size, it was moveable etc... and then he said come and see me in three weeks for a follow up. I went back, he said there's been no change. So he wasn't worried... 

I have severe health anxiety and Google is sending me through the roof...

has anyone had a supraclavicular node story and it not be sinister?? 
 

I suffer with breast acne, could this cause the swelling???

Parents
  • Hi, I've just been reading your story as I was searching online about the same thing. I had my second Pfizer vaccination last Saturday and on Tuesday evening I felt a twinge on my collarbone & when I felt around it was quite tender in one spot and a bit swollen.

    I went to my gp yesterday - he doesn't think it's anything to worry about but is sending me for blood tests next week - I asked him if it could be the vaccine and he said possibly? I got the impression he hadn't heard of it happening before but I've read of a few examples of it online and I think it should be more widely known.

    Any unexplained lump or bump is worrying - I'm reassured to hear other people have had the same thing however I will be more reassured when it disappears!

     

  • Hello

    There are quite a lot of recent posts about the lymph nodes appearing after the vaccine, seems that the UK are not reporting on it as much as the UK. Just looking on Twitter etc there are so many posts. I replied to a few and 2 people from the US said it is widely reported there. Maybe it is here and I just haven't seen it.

    2 weeks ago today I had my first AZ vaccine and 2 days after I felt the lymph node. There are a lot saying to take comfort in it as if it is vaccine related your body is doing what it should but, every lump or bump should be checked out.

     I called my GP when I found mine and hos attitude was shocking, telling me that there was no point in me seeing him as he would just tell me I had a lump, I called again and spoke to another doctor who saw me. Having that attitude might stop someone with a sinister lump get checked!

    He thinks it is vaccine related but didn't seem too know too much I think as it isn't really a thing spoken about here but to relieve my anxiety he is sending me for a scan. I think it might have decreased a bit?

    a pea size lump that sometimes sits on my collarbone, can move it. If I push my collarbone out I can't find it.

    sending best wishes to all. 
     

    Nat

    PS - There is a large thread on this too with over 100 replies that you might find interesting.

  • Hello

    That is really interesting. I'm trying to take comfort in my node appearing that the vaccine is making my body react the way it has. 
    I've reported mine under the yellow card scheme as if people do this will it be listed as a more common side effect? To at least put minds at rest but always good to get checked!

    I am trying so hard not to prod it but just hoping that one day I will look for it and it has completely gone.

    I think warm water on it helps and I read somewhere a warm compress can help swollen nodes.

    I think it is definitely helping. I am so glad we have all found this post, there is another couple of posts with same questions, worth checking those out too, and Twitter I did a simple search of 'covid vaccine lymph nodes' and some interesting finds on there!

    x

  • Hi, I also reported mine on the yellow card scheme. First time round I had palpitations so bad I had to have an ecg too. I'm not sure my body liked it much, but if it puts an end to the last 12 months of lockdowns then so be it!

    I'll have a look on here for the other posts in the meantime. I have promised myself I'll stay off google, although being a student paramedic I was already aware of the link between supraclavicular lymph nodes and lymphoma so staying off google doesn't make a lot of difference really!

    Wishing you and everyone else who has commented the very best outcome. Any further results will be posted on here, regardless of outcome. Stay in touch!

    regards,

    Laura

  • Hi all, I've come back to update you all. I had a chest X-ray a couple of weeks ago, no formal results yet, but the radiographer said she couldn't see anything of note on there, and the doctors haven't been in touch so I'm thinking no news is good news by this stage. 
     

    Also, today I have been for an ultrasound on the lymph nodes in my neck. They checked all around; my thyroid, right up behind my ears, clavicle area. Everything. He said he was having trouble finding it, however I can still feel it, so he sat me up and felt it with his hand, then continued. He said he'll do a formal report, but he's sure it's just a reactive lymph node after the covid vaccine and said there are a lot of similar cases coming through. 
     

    I hope this puts some minds at rest. Has anyone else had any tests or results? 
     

    Regards,

    Laura x

  • Hello,

    I'm new here. I just wanted to share that I too have found a lump (swollen supraclavicular lymph node) above my left collarbone, on the same side of the body that I had the jab. That was ten days after my first vaccination with AstraZeneca.
     

    I am trying not to panic but it's so hard not to worry, isn't it? What I find most difficult is that I can't tell for sure how long the lump has been there. I only noticed it coincidentally when I was (subconsciously) rubbing that area after I got sun burnt in the same spot. I just figured it could have been caused by the vaccination two weeks before. It's really difficult to tell as it's not really in a place I can see or feel. I need to move my shoulder back a certain way for it to become visible. 
     

    I'll have my GP appointment tomorrow but I'm anxious about that too. What if the doctor suggests further tests which might really not be a good idea just yet? This possible side effect has not been made as public here in the UK as it has been in the US, for example  - and there is no data re AstraZeneca. So, it all depends on how alarmed my GP will be and what she knows about the potential vaccine connection. 
     

    And finally, I'm also a little concerned that the lump isn't decreasing in size, or maybe just ever so slightly. If it's from the vaccine, it must have been there for three weeks now. Most sources I've found said swollen lymph nodes should go back to normal after 2 weeks, although one vaccine-related source said 4-6 weeks. Not sure what to think.

    One day at a time. 

  • Hello

    Please don't panic. There is also a few more threads like this and one that has about 170 posts (not meaning to divert to another post but more to show that there are lots in the same position). 
    I am 4 weeks post vaccine and have mine still there and I think it has decreased and that is because I am trying so hard to leave it alone and I think it does help. I have also been putting warm water from the shower on to it too.

    I went to the GP when I noticed mine and he didn't seem fussed at all and is sending me for an ultrasound only because he could see how worried I was. After seeing all of the posts about this same thing I feel so much more at ease.

     I have also found that the USA seem to be reporting this as a side effect more than the UK, perhaps it isn't reported enough? I have reported mine on the yellow card scheme to raise awareness.

    the more I talk about it the more I am hearing of people who have the same and have noticed around time of vaccine. I was wondering when mine would have popped up and if it was before vaccine but then I think well I am sure I would have noticed in the shower.

    Don't stress xx

     

  • Hey Nightlight

    mine has been there since a few weeks after my first jab, which was back in February. I only found mine incidentally too, and it has only decreased a bit in size if any no can tell you that the more I poked at in to check, the longer it stayed at its biggest. It had reduced slightly just before I had my scan, but has increased slightly since they ran the probe over it for 20 minutes. I'm in the UK too and it isn't widely published, but it definitely should be. 
     

    regards, Laura x

  • Hey! Try not to worry too much. I know its easier said than done when you find a lump. About a week after getting my first phizer vaccine i too noticed a lump above my collarbone. I balled crying when i found it. I was extremely worried as I had leukoplakia on my vocal cords last year and dysplasia which were borderline cancerous and I'm only 27. I had a ultrasound and CT scan and my consultant spoke to a head and neck radiographer which confirmed that the swollen lymph node is due to the covid vaccine. I first noticed the lump back in february and while it has gone down slightly, its still there. I've spoken to a few people who have had exactly the same issue following the vaccine. Its normal for us to overthink. Stay away from dr.google..worse thing you can do!! Keep your head up!! I'm sure all will be fine! 

  • Hello!!

    I had my Pzifer Jab last Friday on the left side. In the week my neck (again left side) really seemed to hurt and yesterday I was fiddling about and had a swollen painful moveable lump above my collarbone. I remember seeing in the pzifer document I was given that swollen lymph node are a side effect. Went on google and there has been lots of reporting too.

    This post has also made me feel better. It can't be a coincidence were all finding them after the jab. Must be because of the jab. 

  • Hi! 
     

    This exact same thing happened to me last week and I was going out of my mind with worry! I contacted my gp and went for an appointment the day after and tjeyydidn't seem overly concerned but is referring me for an ultrasound (probably just to put my mind at rest as I'm a massive worrier) 

    Glad I came across this thread as its helped me chill out about it now. Also need to stop prodding and messing with it as it probably won't help haha! 

  • Hi everyone,

    I just wanted to give a quick update. I have now had two appointments with my GP regarding the supraclavicular lump. The first one was four weeks ago (about two weeks after my finding of the lump) and the second one three weeks later.

    I have now had the swollen node for 6 weeks and, although I am almost certain that it has reduced in size a little, I cannot stop feeling anxious about it. The reduction in size is only minimal and has not progressed for the last four weeks. 

    My GP has now booked me in for an ultrasound - but not via the 2-week neck-lump route, so I will be waiting for another 2-3 months. She said she'd expect the lump to have disappeared by then (in which case I could cancel the appointment), but if not, I should have the US.

    I am now starting to wonder if I should ask her to make this more urgent because I have also been having problems with constant acid reflux for the past couple of years - so, I can't stop worrying that there might be something in my esophagus or stomach. (She thinks it's unrelated as I don't have any of the most common warning signs of cancer such as night sweats or weight loss.)

    I am aware that I have to decide this for myself but I was wondering what other people would do in this situation. How long have you had your lumps now?

    From what I've read in this and other threads, it seems to me that those swellings don't always go away within the suggested period of 4-6 weeks. Apparently, some people (in another thread, I believe) have been told during their US examinations that these reactive lumps might not go away at all once they've been chronically swollen.

     

Reply
  • Hi everyone,

    I just wanted to give a quick update. I have now had two appointments with my GP regarding the supraclavicular lump. The first one was four weeks ago (about two weeks after my finding of the lump) and the second one three weeks later.

    I have now had the swollen node for 6 weeks and, although I am almost certain that it has reduced in size a little, I cannot stop feeling anxious about it. The reduction in size is only minimal and has not progressed for the last four weeks. 

    My GP has now booked me in for an ultrasound - but not via the 2-week neck-lump route, so I will be waiting for another 2-3 months. She said she'd expect the lump to have disappeared by then (in which case I could cancel the appointment), but if not, I should have the US.

    I am now starting to wonder if I should ask her to make this more urgent because I have also been having problems with constant acid reflux for the past couple of years - so, I can't stop worrying that there might be something in my esophagus or stomach. (She thinks it's unrelated as I don't have any of the most common warning signs of cancer such as night sweats or weight loss.)

    I am aware that I have to decide this for myself but I was wondering what other people would do in this situation. How long have you had your lumps now?

    From what I've read in this and other threads, it seems to me that those swellings don't always go away within the suggested period of 4-6 weeks. Apparently, some people (in another thread, I believe) have been told during their US examinations that these reactive lumps might not go away at all once they've been chronically swollen.

     

Children
  • So I had the same thing and it definitely shrunk but was still there by the time my second jab was due and I've just had the second one and the lump has doubled in size and I'm back to square one. I'm very anxious about it too even though doctors have said because it's movable it shouldn't be sinister but I keep getting waves of fear that that the jab has given me 'C' I know it's irrational but I'm glad I'm not the only one panicking as I kept thinking in the only one going through this worrry