Hi just wondered how you got on with your dad ,

my mum 66, went for routine blood test some thing come up in her white blood cells . Then dr booked her in for ct scan , that night they phoned and said there was a growth in her upper left part of her lung, they wouldn't say it was cancer even when she asked , she had biopsies / blood tests / ct scans / pet scans and breathing test , and we still have not been told anything , and this was all done last week, 

I can't sleep or get my head round this , 

my mum had no symptoms of lung cancer other than she lost. A stone in weight since last year ,  so I am besides myself , 

hope you had results and your dad is ok x

Hi, did you get any more info on your mum? Hope she is doing ok? 
My dad has been diagnosed with non-small cell lung cancer. Doesn't appear to be in lymph nodes or spread but waiting for some results to come back before they decide course of treatment.

Hiya,

im so sorry I have not seen this message to reply to,

so my mum got a call 3 weeks ago 

telling her she has lung cancer and it is in her left lung and adrenal gland,

they said they were sending of for more biopsies to determine treatment,They finally called her on Friday last week 

she has an apt this Thursday to discuss ,

she still does not kno the name of the lung cancer she has , or the grade or the stage or anything , 

i feel like my heart has been ripped out, 

how is your dad hve they started treatment for him, if it has not spread that is really good and there's so much they can do if it's definitely contained in his lung, 

im just praying they can help my mum, the oncologist did say it was treatable but not operable tht o do know,  but what does treatable mean to profession medical experts . To how I interpreted it ? 
 

let me kno how u are getting on xxxxxx 

Hi, I'm so sorry to hear about your mother. It's so hard waiting for a plan of action and the details of what is wrong. My father has an appointment Friday to discuss his case including treatment options etc. Hoping to have more answers so at least we know how to move forward and what we are facing.

It is a scary time for everyone and just trying to be positive to support my parents and try and help them stay positive too. My dad is quite fatigued and doesn't feel like eating so has lost weight. He is managing to eat but it's a struggle for him at the moment as he doesn't see to have an appetite. He is quite small so just concerned with how he will cope with the treatment they offer him but he is trying to get out for walks to build up strength as best he can.

How is your mum coping? Hopefully you have more answers Thursday and a plan going forward x

Hi, I'm so sorry to hear about your mother. It's so hard waiting for a plan of action and the details of what is wrong. My father has an appointment Friday to discuss his case including treatment options etc. Hoping to have more answers so at least we know how to move forward and what we are facing.

It is a scary time for everyone and just trying to be positive to support my parents and try and help them stay positive too. My dad is quite fatigued and doesn't feel like eating so has lost weight. He is managing to eat but it's a struggle for him at the moment as he doesn't see to have an appetite. He is quite small so just concerned with how he will cope with the treatment they offer him but he is trying to get out for walks to build up strength as best he can.

How is your mum coping? Hopefully you have more answers Thursday and a plan going forward x

Hi DD85

iM sorry to hear your dad is not eating great,  my mum is still eating and doing every day stuff as she has no symptoms, problem Is she is not sleeping now as she is constant worried so she is shattered in the day, my mum is very tiny she got weighed before this all started and was under 8 stone now she is probably under 7 stone, 

this is so hard for them, I find myself crying after I leave my mums as I just can not understand or get my hear round it, I think it's the waiting game, not knowing what's going to Happen, they say it's treatable but what do they mean,  my mum has that oncologist on Thursday and I have asked her to find out what they can do about the weight loss, they might be able to give them steroids or something, will let you kno so you have some idea,  one of my friends at work , 50 years ago her dad had lung cancer it was in one lung and it hadn't spread they gave him a tablet to kee it under control , he continued living for another 15-17 years and this was 50 years ago, he continued all his day to day life stuff and working, so there is hope, I think once your dad has a plan of action aswell and when they start treatment it will be better, but I am to scared of the treatment and what it will do to my poor mum, 

please let me know how your dad gets on,

got to Be positive and vision positive outcome, even if it is tearing us up inside,  will always reply if you need a chat xxxxxx 

Hi Rosie2008,

How did your mums appointment go? Hopefully you found more answers and it was good news.

My dad had his appointment today and the told him it is locally advanced lung cancer and it is in the lymph nodes (which we were previously told they weren't) and the drainage system (not sure what this is but that's what my mum said). They chose not to discuss prognosis as they want to do a PET scan to check the brain. Not sure if it is treatable or whether they will just try and manage it. He has had a problem with his platelet count (since the vaccine) so they are concerned the treatment will make him ill with low platelets. His latest count was up and he has now been brought off medication for it - hoping his count stays up so they can start treatment when they know what they want to do.

Hi DD85

I'm really sorry you have been told different news to what you was told, this is so awful for all of you, 

so my mum has been told she has a small growth in her left corner of her lung,  it has gone to her adrenal gland, as soon as the cancer leaves the primary place even if all the other lung is not full of cancer it is classed as stage 4 

The cancer is non small cell adrenocarcinoma, 

(I knew it was going to be stage 4 as soon as they said a couple weeks ago it was in adrenal gland, as I spoke to cancer research and Macmillan nurses and they said as soon as it leaves the primary lung it is stage 4) 

so all the biopsies we have been waiting for have done brilliantly with the immune therapy treatments, so they are now going to do on Sunday a stem cell biopsies to see if my mum can have stem cell treatment /  Which is a drug trial,

they have said she will hve to have 2 lots of chemo and immune therapy. And if all goes well with the stem cell and she matches she can have that at uch in London as a drug trial, 

the oncologist sounded very positive , he did say it is not curable but treatable, , and the medicines have come such a long way over the years, 

have not asked what time frame, but they did say if my mums walks out with no treatment she would only be here average 9 months , 

ok so what we got to look at with your dad is making sure his platlet count  goes to a normal level ,

the pet scan will tel them where any of the cancer is and if it may or may of not spread so they can plan the best treatment, 

is your dad at home and resting ? Or is he in the hospital, 

hopefully when they do these tests they will

have a plan of action for your dad,  there is so much they can do to help with pain and prevent it spreading,  / shrink it eliminate it, freeze it out/  but with lung i don't think they like to say it is cureable. 
 

try make sure your dad rests and eats as much as he can 

I kno this is awful as I am

going through the same awful

gut wrenching feeling,  x  but we have to hope there are treatments we just have to 

hoping your dad gets some results and a plan very soon xx

Hi,

Glad to hear you have a clear plan in place and that there seems to be a positive way forward. I hope the treatments are effective for your mum and she copes well with them. Sounds good to be part of a trial - hopefully it will help your mum.

My dad is at home and trying to remain somewhat active for strength and eating as much as he can. They are using PET scan to check brain so hoping that comes back clear. His cancer is squamous non small cell and they said it is locally advanced which according to google is stage 3 but my mum/dad didn't ask about stage. 
 

It's all just so surreal and the waiting for the next step seems to last an eternity. Just hoping that they can start treatment soon and give him the best chance to beat it/manage it x

Hi DD85

wanted to check in and see how your dad is doing,

and how was the pet scan results ?

my mum

is suppose to start treatment next week chemotherapy & immunotherapy keytruda is the name of the therapy,

we looked in to the stem cell research and I had one of my friends whose high up in pharmaceuticals look in to it, 

but my mum was not keen on going for the trial it was a phase 1 not tried on anyone , and there is a high risk of  blood clots, the phase one is trying to determine what dosage to give people,  and she would rather take the safer option of the other stuff offered , as with a. Drug trial phase 1.  We do not know much about anything working, as there was non of that info provided in the paper work, 

told my mum to ask questions to the oncologist but I think she had made her mind up, she said she be to scared that she die of a blood clot (as this is what my dad passed away of when he was 46 years old) 

So we have been waiting for the treatment to start this has been a long wait since end of March when the first blood tests were taken and the scans begin of April,

I just hope this waiting time has not effected anything,

please let us kno how u are getting on,

sending my love to u and your dad xxx

Hi Rosie2008,

Thanks for checking in....glad to hear your mum is starting treatment, I really hope it is successful and she can beat this. It seems like she gave good consideration to the trial and you did the right thing to get advice...I'm sorry to hear about your dad, it must be difficult for you both to hear the treatment can be linked to blood clots and it seems like it would be too painful for your mum to go with the trial...I guess it's important that she made the decision on what she thought was best for her. The waiting is definitely so hard...we are finding the same.

My dad had his PET scan last Friday so we don't have the results yet. They have ruled out surgery as it is in his lymph nodes. Due to his platelet count being low they are concerned about all the treatments at present...however, his platelets seem to be back to normal and he is off medication - heamotology seems to think it could have been a reaction to the Covid jab. We are hoping his blood results will show his platelets are normal since being off medication and he can start treatment ASAP! Like you we are concerned about the consequences of waiting so long from diagnosis to treatment, especially as the consultant seemed to think the tumour had been there for months not years...very concerning what has happened to the mass in the mean time!

Hope you are holding up well, it is so emotionally draining!

keep in touch x