Hi, I'm a 44 year old woman who received news of a high CA125 (122 U/ml) at the start of the week. I've been experiencing constant and increasingly severe pain in my side for around 8 months which I thought was part and parcel of lumbar facet and hip joint pain. I've had a number of steroid injections to settle the back pain but when the specialist performed nerve blocks the pain in my side didn't change when the rest vanished. I saw a physio who advised me that the pain was actually in the trans abdominal area and suggested I saw my GP. At this point I should say that as a fibromyalgia sufferer I know not to go to the doctor every time I get pain as they can be incredibly dismissive so I tend to just struggle on. I have been experiencing bladder problems since January but was diagnosed with irritable bladder 9 years ago so although it was a lot worse than usual (needing to go every 20 minutes through the night), the GP dismissed it as anything else after a clear dipstick back then.
Although I'm only 44, it was determined that I was in full blown menopause at the age of 36, so I'm reproductively older. Having experienced chronic illness and severe illness from a very early age I'm usually resigned to bad news and tend not to get anxious about health matters. When my GP phoned with the results though, he told me he couldn't reassure me which massively triggered my anxiety. I'm waiting for a pelvic ultrasound which was flagged as urgent with the test result but as yet I don't have an appointment.
Can anyone tell me if a CA125 of 122 is particularly high, or whether the level of test correlates with what could be wrong? Other then early menopause ive never had any gynaecological symptoms in my life, normal short and light periods. I never got the chance to have kids before my ovaries closed for business either. Thanks so much.