My bloods have all being fine. Expect liver enzymes slightly over but doctor wasn't concerned. I think if there was anything worrying they would have done further checks my last mri was 4 months a go so I suppose that's kinda reassuring because I would have thought they would have had me straight back in if they suspected cancer I had a sharp pain when running down stairs in liver this morning xx
Yeh I think your right in what you say & that’s good that your blood sugar came back alright (despite the liver enzymes). Just a thought, you should document (date and time of day) what pains you get and what you were doing at the time so you can query it at the next consultation. I sometimes worry with doctors/hospital after they misdiagnosed my dads brother for 2+ years, he had bowel cancer which spread....he’s been gone a year. My nans best friend was given 6 months we discussed her funeral wishes, she blew all her savings and loved every second she had....she lived nearly 15 years longer than expected! My dads best friends daughter was given under a year (brain cancer) and she’s still here today (many years later) although is bed bound, blind, deaf and suffers horribly now. Cancer is so scarily unpredictable, i hope one day we will have a cure for all types. The spirit and sheer determination of people with cancer is absolutely phenomenal, it really makes you see life in a whole different perspective. Sorry I seem to of mumbled on a bit!
It's there most days mostly when I think about it.. and oh no how did they misdiagnose your dad and brother? I also know someone who is 76 under the same hospital as me told he had liver cyst turns out a year later it's cancer he doesn't have long left to live now. This is what scares me the most that maybe they got mine wrong. But I suppose making my life miserable and worrying isn't going to change whatever the outcome is xx
They kept saying it was ibs then would check for chrons and ibd....done loads of tests, cameras, bloods, surgery when he had blockages. It was awful, he suffered so so much before he was diagnosed, he spent 40k on trials which sadly didn’t help. When he got to the final stages, he didn’t look like the same person at all, my mum & dad didn’t allow me to see him to say goodbye (he didn’t want anyone to see him). There was no funeral (his arrangement) and that’s been quite hard to process, especially for his wife and adult kids. I’m sort of in the same position as yourself but rather with my shoulder so I do understand the anxiety and worry it brings. My mums currently waiting on a biopsy which I’m also quite concerned about, her brother has blood cancer and is starting chemo/radiotherapy soon and her estranged father has prostrate cancer (terminal). The hospital haven’t been too good with my mum but she still doing ok at the moment somehow. Sorry to hear of your friend with liver cancer, it’s horrible isn’t it?
I'm so sorry to hear what your family are going through. I suffer with anxiety so even when doctors reassure me it only last a hour before I'm back worrying and worried I've got cancer I know I'm only 26 and the chances of having liver cancer is small. It's so draining the past 4 months as just being a nightmare if I'm honesty xx
Thank you for your kind words, could you ask to see results and have them explain it all clearly for you (not in medical term) as it may not be as confusing. Have you mentioned to your doctor about the worries you have and how the health anxiety is affecting you? They may be able to help or offer some CBT, 26 is young but it’s still always reassuring to have a proper check.... only you know your body and if you feel something isn’t right then it’s better to be safe. The delays from covid and the waiting doesn’t help and will probably make anyone feel more anxious, I get what you mean by it being exhausting. Iv waited a month just to see the specialist, I waited 6 months for an ultrasound scan it’s hard but am plodding along as best I can xxx
I'm going to take it further after this MRI if not explained clearly. Letters are very vague basically after MRI radiologist said some are fnh and the others may be liver adeomas. Then they had a X-ray meeting and it changed to "likely benign and FNH" and for a follow up in 4 months I've spoken to a number of GP that have just reassured me it's being looked at by a group of specalist and basically everything will be fine. They've referred me for councelling up to a six months wait and sounds similar to me the ultrasound I originally had took six months. But then they reffered me to a specialist and that only took two weeks and then a MRI the week after. Hope everything goes okay for you xxx
I would ask them for a straight honest answer and see how they respond, ask why they are not certain on the results and explain how the uncertainty of it all is making you feel. There needs to be some clarity on the results of the tests and reasons behind them wanting to double check (I don’t think that’s a bad thing). That’s good that your on the waiting list hopefully when you start the counselling itl help you. Thankyou me too :-) xxx
I did actually ask the specialist about a second MRI I said is it cancer he went no no no not cancer he said the second MRI is more for the doctors reassurance he said that the way the contrast run through them and the central scar they're quiet confident but I'm asking for more answers after this scan cos they misdiagnosed someone else with the same thing. But all doctors said is there's all different factors between us both xxx
