Hi everyone - I am seeking any advice for my sister.
Full details below -
Always had painful periods and horrible tummy either constipated or opposite for years.
After during her pregnancy with second child 18 months ago she started with horrific pelvic pain.
After birth the pain continued - both back and pelvic pain until she could not push pram lean over to pick child up. Her period returned only 8 weeks after the baby arrived and along with thing horrific constipation - she now has to have these daily to try and be normal.
After a prolapse and many doctors appointments she was in horrific pain she paid for private MRI scan which showed bone marrow edema of the pubic bone. She had some physio but pain continued to be horrific - she felt it worse in back. Along with this her tummy has swollen to look like 6 months pregnant- living in laxatives and struggling to cope with pain so was put on naproxen which made her have dizzy spells and more constipation and anger. Came off these and was put on anti represents to depress the nerves in her back.
She was referred to MSK and they sent her for second MRI - this has shown fluid in the endometrial cavity - high intensity ovarian cysts and with some hemmirogic content.
- Doctors have not rung her - she has been on phone for this last week trying to get through. The notes on latest MRI said to book in for a ultrasound. Today she went for a private ultrasound and they said no cysts and overies look fine. But her lymph nodes are very swollen. And told her to boost her immune system!!!! How can this be causing such pain she can’t push the pram or play with her children. How can both things be different. She looks very thin apart from her swollen tummy and gets full quickly - she looks pail and always tired. Her periods are Very painful and naproxen and paracetamol won’t touch the sides. She also has unexplained lump on her leg.
What do we do next - I feel something is really not right and don’t want to waist time. Our grandma died of leukaemia at 50 - we never met her but my mum said she was in lots of pain in her back and blood test came back clear about 5 times etc - Manchester area.
Anyone had similar experiences getting a diagnosis or symptoms.
Many thanks in advance x x
