Hi im sorry your going through this at the moment. I was diagnosed with hodgkin's lymphoma last year after numerous trips to my GP with various symptoms.  I had weight loss, loss of appetite, heart palpitations, breathlessness, pain when consuming alcohol and very high ESR and CRP levels in my blood tests. I was 28 at the time of diagnosis.  

The waiting for diagnosis is really really tough but I would like to say that if it is hodgkin's lymphoma it is extremely treatable and has 90% cure rate. If you have Facebook there is a lymphoma action support group page where people ask questions and get information. 

I hope you get answers soon

Hayley 

Hi, I hope you're doing better now! Thank you so much for putting my mind at rest, and I think I'll join the Facebook group too.  Thanks again! :happy:

Yes I was declared in remission in September 2020. There is also a uk hodgkin's lymphoma support club. If you search it, it should come up. X

That's great!! I will do that to :) x

I would also like to add that you are certainly not wasting NHS time. This is what the NHS is for ( I'm a nurse) and it is better to be over cautious with these things than not. To add I didnt have any visible nodes at all ! 

X

Hi Jessy,

I'm in a super similar situation to you right now but I'm a bit further along in the investigation. Lump behind and a bit under my left ear which I noticed back in January which has been slowly growing and now feels like it's a few cm in diameter under the skin, extreme fatgiue and breathlessness and weight loss which I put down to the stress of university. The lump also has those weird characteristics yours has of being ummovable, hard and painless. I also think we're probably similar ages.

I have been through pretty much the same process as you: telephone appointment with GP who booked me in for an in person appointment and blood test. Blood test didn't give many answers though and upon looking at the lump she agreed that I need a scan and that's as far as I've gotten. I have an ultrasound in a couple weeks and am also struggling a lot with the anxiety of the wait.

First of all, you're definitely not wasting NHS time. If you were the GP wouldn't be seeing you but seeing as you've been booked in for these tests and your appointment it's clearly something worth investigating. Don't worry about that side of things in the slightest, you deserve to have this sorted out even if it isn't cancer. As for covid and wait times, unfortunately I think they are a bit extended which doesn't help but I've found just reminding myself that it's incredibly unlikely to be cancer and that lymph nodes swell over anything has been somewhat calming. Definitiely avoid Google and find small distractions for when you get anxious. I'm sorry I don't have sounder advice but hopefully a little bit of it is helpful. Feel free to send me a message if you want to or if you ever get too worried about it :)

Wishing you all the best going forward with this, I really hope everything works out for you!  

Hi,

Thank you so so much for your reply, it does seem as if we are in very similar situations and it's given me some hope in that respect! I feel less alone. So thank you! It's good to know also maybe some future steps the GP will take as you are a little further ahead. I agree, I feel in some ways the waiting is the worse part. Because what your brain is telling you - most of the time - is way worse than what the doctor would say. And I guess that's very true in regard to NHS time, I think it's the waiting around that's letting me get my head in those places!

Thanks again, and I hope everything ends up going well for you! 

Hi, 

did you ever get results? 
 

I'm in a similar situation and really hoping for news soon, 

natalie x