Does this sound like Mycosis Fungoides?

Hi,

 

I'm 22 and I have had a rash for over a year now that has been on and off extremely itchy on my lower abdomen on both sides, it has gone from red to brown and and comes and goes alongside itchiness that has been particularly bad at night. It hasn't responded to steroid and other fungal treatments and has very slowly grown over the year and mycosis is the only thing I have found that matches the description in looks and itchiness. Over the past 3 months a few glands on the left side of my neck have grown larger than the right side also. I am getting a full blood count on Monday and scared sick for the result. 

 

Has anyone had a similar experience? 

 Thanks x

  • Hi Tigerbilly1,

    Welcome to Cancer Chat. I'm sorry to hear that you've been having these issues with the rash. It's only really a doctor who can advise on this so I hope you're able to find out more soon from them. Try not to Google too much as self-diagnosing isn't possible and it can often increase worry.

    I hope things improve for you soon and that you can get some answers for this. In the meantime, if anyone here has any similar experience to share then hopefully they'll be along soon.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Hi ​​​​​​[@Tigerbilly1]‍ 

    I know it's been over a year since you posted this but my twin sister has these exact symptoms and we're really worried too. 

    Did you ever get to the bottom of what was going on?

    Any insight would be very helpful.

    I really hope you're doing alright. X