A neck lump. Trying my best not to worry bout lymphoma.

Hi,

I made an account because I was getting a little tired of driving myself nuts.:cry:

In December 2020 I found a lump in my neck that just didn't go down. It's under my left ear. The thing is in 2015 I had a pretty stressful cancer scare which began with a lump on the right side and ended with a partial thyroidectomy. 

So I tried to ignore this new lump, dismissing it first as just a swollen lymph node until February when I finally got the nerve to go the GP because it is hard and immoveable and didn't go away. Can't keep lying to myself and say it'll pass lol.

I told the GP perhaps it's just the same as last time a thyroid thing and benign but after examining me she said it's nothing to do with my thyroid or anywhere near it. Instead she asked me questions if I had any other swellings/Lumps, fevers and if I had an itchy scalp or skin. 

That's when I realised she was looking for cancer symptoms (lymphoma) but she never did say the word. I know they won't say cancer this early.  

The truth is, I have been really tired and I have had low grade fevers felt generally unwell but that really could be something else. It was winter and I don't get enough Vit D anyway. I don't have any other symptoms associated with lymphoma. And in my opinion that's not really enough to get worried bout so I didn't really the GP tell bout that.

The GP did however refer me to the ENT who booked me to get an ultrasound scan for next week and I've been good at staying calm (I think!)....until now.

I keep having awful flash backs about what it was like before with my previous cancer scare. The biopsy, the surgery, the waiting for results. It was a nightmare that was happening at an already awful time (I was at Uni at the time). 

I know I should feel so grateful that my previous health scares were resolved and not let that impact me now but I don't think I have the energy to through this again. The wait. I feel weak and ungrateful and impatient :cry:

The questions keeping me up all night are: Is an ultrasound reliable way of telling the lump is anything to worry about?  When will they tell me yes or no? What's the time line for a confirmed diagnosis for lymphoma? And what are the chances it's just a benign lump and I'm just driving myself nuts for nothing?

Any advice or stories about your own diagnosis will be so appreciated. Sorry for the lengthy post.

Best wishes,

Bee

 

 

 

 

  • Hi,

    Sorry to hear about your previous scare

    I'm suffering from a similar thing I found a lump in the right side of my neck a couple of months ago which is also quite hard and doesnt move

    I finally got an appointment with a gp on the 24th but my health anxiety is so bad right now the wait is horrible its hard not to convince myself its not something serious like cancer

    I have had other symptoms over the last couple of months such as aching muscles all over my body, headaches and nausea but not sure if it could be related or not since my gp put that down to my anxiety 

    I have had blood tests and apart from a slight deficiency in folic acid they've came back normal not sure if this is a clear sign it wont be cancer or not scared that they might of missed something 

    I understand how scary it must be for you I'm quite scared myself to be honest 

  • Hi,

    I'm a bit further along the road than you.

    As far as I am aware the ultrasound can show that the lumps in your neck are either normal or not - it cannot definitively diagnose what is wrong with you.

    If your U/S in abnormal you may be referred to a consultant, sent for further scans or a biopsy. 

    I know how hard it is waiting for tests and results - fingers crossed for you

    P

  • Hi C,

    Thanks for your message and really sorry to hear you're also going through this. It's awful wondering if it's your mind that's making you so anxious you're having physical symptoms or if it's something else.

    I had a blood test too and my bloods came back okay. But until they've examined the lump I don't think we will be able to tell anything from just bloods. 

    Are you booked for a scan? Did they say what's happening next? 

    Hang in there. I hate you're also going through this but I already feel 50% less crazy to know my worries aren't unreasonable and someone else feels the same. I hope that brings you some comfort too. 

    Best wishes,

    Bee

  • Hi P,

    Thank you for your message and sorry you went through it too but thank you so much for answering my questions. 

    I'm glad to know that the ultrasound will give at least some answers (normal or not) even if it's not the full diagnosis I hoped for. I guess patience is key. I am booked to see ENT in May face to face. It's a bit of a wait from the first scan which will be next week but I guess covid is impacting this and again...patience. 

    I hope you didn't get bad news yourself and aren't waiting around for treatment if you did. Stay well. 

    Best wishes,

    Bee

     

  • Hi Bee,

    I've never have had a cancer scare before but I can understand why this situ would bring all that back.

    I have an enlarged lymph node. Have had it since Nov/Dec, blood tests showed my lymphocytes were low, but a second blood test showed they had bounced back to an okay level.

    Had my ultrasound on Wednesday and it was 'atypical / abnormal'. Freaked me out tbh.

    The process seems to be: you have the scan, and you can ask questions after they're done. They then send a report to your GP. If the ultrasound is done in a hopsital and it looks abnormal they can (I think) do a biopsy there and then.

    They told me the report would be send to my doc within 7 days but they did it in a day. Now I'm just waiting to hear from my doc re next steps.

    Have no idea re how many are beign vs probelmatic, but hopefully they'll tell you there and then if they see anything is wrong. If they don't, just ask.

    The waiting is horrible.

    Here if you need to talk.

    G x

  • I know this isn't quite the same scenario but my son had 2 big lumps next to each other for 3 months. Since beginning of December. I was driving myself crazy thinking he had lymphoma because its actually common in young children under the age of 15.

    He had his scan yesterday and was told they were both benign and nothing to worry about. Sometimes they flare up because of an infection and just don't go back down. I have one behind my ear for nearly a year now.

    Today I had bloods and next week a chest xray but the gp isn't worried and she too said the same sometimes after an infection they don't go back down. I'm just have the xray for precaution because last yeat I had a terrible chest infection. 

    Also with regards to Itching and your scalp I was under the impression that your glands in your neck swell because of scalp infections that you might not even know you have. The ultrasound Dr said that to me yesterday about my son.

    Please try to stay positive, believe me I know it's scary but the one thing I now want to tell people after experiencing the most anxious 3 months of my life. Google isn't correct, nowhere did I ever find a site telling me "sometimes lymph nodes stay swollen for no other reason then after an infection they never went back down" and that's all I wanted to read for some reassurance. Xx

  • Hi Georgie, 

    Thank you for sharing your experience and answering my questions. Thanks to everyone here, I feel a little more prepared for my scan next week (it's on the 24th). I feel nervous now so I definitely sympathise with you bout freaking out after the results. It really can't have been easy. *Hugs

    It's good to hear they got back with the results pretty fast and you're discussing next steps. The wait is the worst so let's try and get each other through this. :happy:

    Best wishes,

    Bee

     

     

  • Hi M,

    Thanks for the reassurance. You're right Dr. Google is the enemy and here's hoping the results show it's nothing. It's just so awful how much worry can take out of you. I've done this before. Months of waiting the first scare. You'd think I'd be better prepared and able to handle it after having been thru it before. But apparently not! Sigh. I'll try my best especially with you guys reminding me to stay positive. 

    I'm so glad to hear your son is well and you are feeling positive bout your own health too. 

    Best wishes,

    Bee. 

  • Hi Bee,

    I'm so sorry to hear about what you're dealing with :( I'm in a bit of a similar situation myself, noticed a lump under and a bit behind my left ear in early January which is immovable, hard and painless. While I have never had a cancer scare before, I am also dealing with sky high anxiety waiting for my ultrasound and so I can only imagine what it's like when you've been through this before.

    Your feelings by the way don't make you ungrateful at all and who wouldn't be impatient considering the results you're waiting for? It's such a normal feeling to just want everything to happen quickly and you shouldn't feel guilty. Every feeling you're having is natural and understandable.

    Wishing you the absolute best with everything.