Raised CA125 and awaiting my scan - feeling terrified

Hi all,

Thanks for taking the time to read this. 

I'm 34 female, no children. I called my doctor complaining of bloating, some abdominal pains and constipation at the start of February. I got some laxatives and bloods taken, which to my horror, returned an elevated CA125. I had convinced myself it was routine and nothing to worry about. 

The doctor seemed to indicate it was "mildly raised" and wanted me to repeat it. Again i convinced myself it would be fine. It again came back with a similar result (i have been told it was between 46-51). I am now awaiting my scan and got my apt for the 25th March.

I am out my mind with worry, mainly because I am still getting these abdominal twinges and have ongoing tummy problems. I have never had these issues before in my life. I never thought in a million years when i made that call I would be facing hospital tests. 

I know theres lots of benign reasons it can be raised, but i dont have any issues with my periods/bleeding, so it seems most logical that i have some kind of cyst which is bringing out these symptoms. I am absolutely terrified, mainly because I really want kids and am aware that even if i have a benign syst which needs removed this could be bad for my fertility. If I had a cyst which was small, surely i wouldnt be having these symptoms?


It is completely consuming my thoughts, I am hoping to hear experiences of other women who have been in a similar position and what the outcome was for you?

Thank you



 

Parents
  • Hi,

    I have a large cyst currently (during and after my recent pregnancy) and I also have raised tumour markers and had an MRI scan on Saturday. Your levels don't sound too raised and sounds like they are on the case which is great news. Try not to panic. If you do have a cyst that needs removing then I'm sure they will try and keep as much of your reproduction organs as possible. I've had two other cysts removed in the last 3 years and they didn't touch my ovaries however it's now time to say bye bye to my left one! 

  • Thank you for your reply. I'm sorry to hear about your left ovary.

    Can I ask how the other 2 cysts came about, symptoms and process etc?

     

  • I got them from pregnancy and they grew quickly. My biggest was 24cms and that was from my first pregnancy and the second just after my pregnancy and then this one from pregnancy. Literally just pregnancy!! But the gynaes never want to remove ovaries unless they are become a real issue (pain and large). I was lucky that I don't suffer from symptoms but my current one did twist in November and that was very painful 

Reply
  • I got them from pregnancy and they grew quickly. My biggest was 24cms and that was from my first pregnancy and the second just after my pregnancy and then this one from pregnancy. Literally just pregnancy!! But the gynaes never want to remove ovaries unless they are become a real issue (pain and large). I was lucky that I don't suffer from symptoms but my current one did twist in November and that was very painful 

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