Pancreatic cancer fears

Hello everyone

I am new here and reading others' posts to the forum I have been both terrified (by the heartbreaking scenarios some are facing) and encouraged (that I am not alone in my fears and all-consuming anxiety).   
 

I am a previously fit and healthy female of 54.  Since Christmas I have been experiencing a range of symptoms which have worsened over time: mild indigestion, dull ache in right side under ribs and more recently the same  in my mid-back, tiredness and now some albeit minor weight loss  all of which, seem to me, based on extensive online research, to match with pancreatic cancer and very little else.  
 

When I first saw my doctor at the end of December she thought I presented with symptoms of  all too common gallstones and I was reassured.  She referred me for bloods and ultrasound, mainly  for my peace of mind.  Other than slightly raised amylase  my results were normal and on a repeated blood test the amylase had lowered which was further reassurance.  The ultrasound showed no gallstones and a normal thin-walled gallbladder.  Although still experiencing intermittent symptoms, I felt it might just take a while for things to settle if my gallbladder or pancreas had been irritated.  However iby mid Feb my symptoms seemed more frequent and the dull ache in my side although not constant had spread to my back.  Also I was finding I am less hungry, so  I went back to the doctor (was seen by different doc) who referred me for a chest x-ray (which was clear) and a CT scan which I had yesterday,  
 

I fully understand the dangers of Googling symptoms and also, I am aware that at the moment - in lockdown, with time on my hands and a lack of the normal distractions - I am probably hyper-focussed on my symptoms  but they match so well with pancreatic cancer, particularly as they  have steadily worsened.  I also know it is one of the most difficult cancers  to diagnose, frequently not picked up by initial diagnostics  and also to treat so I am terrified and already trying to prepare myself mentally for the worst news.

Just wondered if any of this resonates with anyone else.

Thank you.

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  • Hi Bluebear and everyone else on this thread,

    I'm new on here and just read your post, I can't tell you how much it resonates with me!

    I started with a dull ache just below my right rib in feb 2020 & first went to my Gp in May, she was great and did lots of blood tests (all ok) and I had an ultrasound which found a gallstone so it was decided that was the problem much to my relief.

    The pain became worse - more sharp at times and also in my back and when I laid on my front it felt a bit like I was laying on a "lump" on my right side, I assumed this was my gallbladder getting worse, however I had my gallbladder out in January and now the surgical pain has gone I've realised the symptoms are still there, along with tiredness/fatigue, though they do feel worse. I spoke to my Gp who then seemed worried that on the ultrasound they hadn't been able to see all of my pancreas so I'm now having a ct scan on my abdomen, pelvis and pancreas on Saturday.

    Like you the only thing I can see that my symptoms match is pancreatic cancer so I've convinced myself that's what I've got and that I'm going to get bad news very soon, I'm incredibly anxious about it and have found myself crying a lot this week and struggling to concentrate on anything else (which explains why I'm scrolling on a cancer chat site at this time of night when I should be in bed getting some sleep before work in the morning!)

    Anyway I hope it is a good outcome for all of us

    Meg 

  • Hi Meg,

    i will be thinking of you tomorrow, please let us know how you get on.

    Podge.x

  • Thankyou so much I will, I'm terrified of the results and a bit rubbish at the moment 

    Meg x

  • It's blummin' hard, isn't it. 

     

    Just got a letter asking me to go in to see my consultant on Thursday. Gulp :sad: (my previous, cancelled appt. was a telephone one).

     

    A bit nervous now.

     

    Keep strong (easier said than done).

  • It is hard, I'm sending you positive thoughts for Thursday, maybe you've got a face to face appointment due to Covid restrictions being lifted a bit?

    You stay strong too

    Meg x

     

  • Hi Guys 

    I got my ct scan results this morning (very quick) and they didn't find anything, I've still got the pain so am trying to be comforted that they didn't find cancer and I'll work out how to address the pain later but at the moment I'm just overwhelmed with relief (was sobbing on the phone with the Gp) and trying to believe that they haven't missed something.

    It has been such a help to talk to you all on this forum and I'm sending you all my very best wishes and positive thoughts, much love xx

    Meg x

  • That’s fantastic news Meg, I’m so pleased for you. I agree, give yourself some time to absorb the news and then worry about next steps.

    We’re still waiting for results but I’m hopeful that no news is good news as it’s been just over 2 weeks now.

    podge.x

  • Not good news for me, I'm afraid.

    tumour in the tail of my pancreas. It is, however operable, so that's something.

    Feel a bit numb, & very very guilty for what I'm about to put mrs. WB & my lads through in the next 6 months.

    time to move to the 'newly diagnosed' forum.

    I wish you all the best, & may all your tests come out negative.

    stay strong.

     

    WB

  • Oh WB

    I'm so sorry to hear your news, 

    I'm sending you my very best wishes for your surgery, looking at your previous posts it appears you've already been on a long journey with this and have faced it with strength and I hope this continues to help you.

    Stay strong, sending positive thoughts your way

    Meg x

  • Thank you so much for that.

     

    Wishing you & all on this thread the best of luck, & sending good vibes.

     

    WB

  • Hi very sorry for your recent news, I am 12days post op now still in hospital after having my entire pancreas removed as well as other bits instead of a whipple proceedure, I have not eaten a thing and I'm in constant pain but all the doctors tell me I'm doing fine which seems crazy to me I'm convinced if I can get through this nothing else will ever be as hard.

    So Good luck  with the decisions you make and the routes you will travel

     

    all the best Danny 

  • Danny,

    thanks for the message. I'm due a distal pancreatectomy & splenectomy end of April, no date, yet. 
     

    wishing you a speedy post op recovery, a reduction in your pain level, & the return of your appetite.

     

    all the best,

     

    will 

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