Hi Podge,

what a distressing time you are having. I know the sense of helplesness when a loved one is ill, & you don't have the answers you want. I can't however imagine how awful & lonely it must be in your situation, away from husband & kids, coping on your own. I have immense respect for you. Mrs. Williumbill looked after her mother for the last 2 years of her life, but at least she was at home. I hope you get the results soon, & that they bring  good news.

p.s. From one of your earlier posts, i see you have retained a sense of humour. Personally, i believe this is really important in keeping yourself sane. 

Hi Bluebear and everyone else on this thread,

I'm new on here and just read your post, I can't tell you how much it resonates with me!

I started with a dull ache just below my right rib in feb 2020 & first went to my Gp in May, she was great and did lots of blood tests (all ok) and I had an ultrasound which found a gallstone so it was decided that was the problem much to my relief.

The pain became worse - more sharp at times and also in my back and when I laid on my front it felt a bit like I was laying on a "lump" on my right side, I assumed this was my gallbladder getting worse, however I had my gallbladder out in January and now the surgical pain has gone I've realised the symptoms are still there, along with tiredness/fatigue, though they do feel worse. I spoke to my Gp who then seemed worried that on the ultrasound they hadn't been able to see all of my pancreas so I'm now having a ct scan on my abdomen, pelvis and pancreas on Saturday.

Like you the only thing I can see that my symptoms match is pancreatic cancer so I've convinced myself that's what I've got and that I'm going to get bad news very soon, I'm incredibly anxious about it and have found myself crying a lot this week and struggling to concentrate on anything else (which explains why I'm scrolling on a cancer chat site at this time of night when I should be in bed getting some sleep before work in the morning!)

Anyway I hope it is a good outcome for all of us

Meg 

Hi Meg/ Bluebear

I am also new on here this is my first post, I had just turned 40 in Dec and on the 4th Jan 2021 my wife remarked to me that I looked completely Yellow.  I had had a stomach ache over the Christmas period but put it down to too much food and alcohol, I went to A&E that night and I was admitted as I was jaundice.  I had various scans, CT ultra and an MRI, I was then advised I needed an Endoscopy to clear a blockage in my Bile duct as no stones were found in the scan leading them to believe the blockage was being caused by something else; not at any point did I think it could be cancer.  I had 3 endoscopy's in total over the 3 weeks I was in hospital, brushings were taken and when I was told by the consultant it was cancer I was completely devastated. The consultant then advised myself and my wife that he strongly advised me to have Whipple Surgery, as there was a very good chance of total removal of the Cancer, obviously at the cost of major life changes.  I was sent home to isolate and my surgery was arranged for 22nd Feb but on the day of Surgery I tested positive for COVID even though I hadn't been outside my house since I left hospital.  The op was cancelled and I am now due to go back in next Wednesday 17th March for the operation.

My life has been turned completely upside down in the space of a couple of months, I have never been sick or ill in my life and I hoping and praying for the best possible outcome and hopefully by next Thursday I will be Cancer free.

I will be hoping and praying that you guys also have a positive outcome and that your nightmare will soon be over.

All the best Danny 

Hi Danny,

what a shocking story. I'm pleased to hear that your team think surgery is a viable option, that is such good news. When i was waiting for a endoscopic ultrasound, one of the people in the waiting room was so jaundiced, I'm not at all, just pasty white.

I'm still waiting for my results, & was told by my liaison nurse yesterday that it should be next week (it'll be 5 weeks since my biopsy). My story is longer than yours - a year long sore abdoment during which i had a week in hospital with acute pancreatitis (plus several splenic problems) which has refused to go away.

wishing you the very best, and hoping your surgery is a success followed by an all clear.

Hi

Thank you for sharing your stories.  I am at a lost to know what to say to what you are all going through.  It seems this area of the body is so complex as WB says and there is no single diagnostic often nor any quick answers.   

I am able to rationalise things well until the pain hits and then that all goes out the window.  I have bloods this afternoon.  I am concentrating on pain management until my endo. In 10 days time.  Very low today so will keep this brief.  I. dont want to share bad vibes!
 

Wishing you all speedy results  and answers.  Good  luck with the surgery Twinney1980.

Bluebear

best of luck with the bloods. With you all the way!

Thank you WB.  
 

Hope your biopsy results and bloods sre with you soon. BTW, do you know which colour blood test is used for the CA19-9 marker?  I am having gold/purple again  (plus grey for glucose) today.  

x

No idea about the colour, sorry. I just turn up with the form from my consultant & hand it over to the phlebotomist.

Just found out this morning that a friend has been diagnosed. This has not put me in a good mood :-|

Hi Danny

I hope everything goes well for you with your operation xx