I feel your worry. I have had problems on/off with my digestive system for years but symptoms always settle down after 2-3 days max. This did not happen last time, with chronic diarrhoea, some sickness, pain in right side which can go right through to my back. This started early December and by Xmas had been to my doctor twice with various test taken. FIT test came back clear, calprotectin level slightly raised (now normal), bloods OK.

Symptoms did not improve but as tests were clear no referrals via NHS. Luckily, although reluctantly, I can afford to fund some private health care, so booked. Colonoscopy not completed due to loop in my colon, so last week had a CT Colonography. Between these 2 tests, did manage to see a doc via NHS, who thinks it might be gallstones, thyroid issues etc so follow up blood tests only taken this week.

Like you googling symptoms and they are also getting worse. Worried sick and sure I have pancreatic cancer as a lot of my symptoms match. Getting my results of CT Colonography on Monday, but taking panic attacks, crying a lot, don't want to eat.....probably making myself ill. Fingers crossed for both of us, take care.

Hi Karma84

Thanks so much for your response.  Helpful to know others are in similar situation, not that I'd wish this on anyone!   I am also going from moments of tears and almost unbearable anxiety to almost calm acceptance (which is bonkers I know when I don't even have a diagnosis yet) but somehow expecting the worst seems like a protective mechanism.   Hope you hear encouraging news on Monday.  

Got my results this morning....all negative.

It would appear that I have a very long and loopy colon, which according to internet search, may be helped by a change in diet to include more roughage. Going to give this a try and see if it assists and that any changes helps with my worrying and anxiety as well. 

Fingers crossed everyone on here gets some good news and is able to get results and hopefully manage their condition....good luck to you all :-)

That is good news.  Hope the diet re-boot works well for you!

Brilliant news! So pleased for you.

Podge.x

Thank you very much. Everything crossed for your mum, your family has been through more than enough. Please take care and if you feel like it, let us know. XX

How are you doing Bluebear? We’re still waiting. Trying to stay positive! Laughed today as nearly lost mum down the loo as she’s lost so much weight. 

Podge.x

How are you doing Bluebear? We’re still waiting. Trying to stay positive! Laughed today as nearly lost mum down the loo as she’s lost so much weight. 

Podge.x

Hi Podge 

Thanks for asking.  Bit all over the place.  I heard on Tuesday my CT can was okay bar a couple of harmless cysts on my kidneys.  Initially I was euphoric as I had got myself into a dreadful state but once I had had time to think again it wasn't long before the fact I still have the symptoms and no answers, hit me and I started getting anxious again.  I now have an endoscopy booked for 12 days time.  Not looking forward to that but still pleased to be referred for further investigation.  My doc also prescibed a PPI drug Omeprazole to try in case my symptoms are caused by an ulcer or too much acid in my stomach/duodenum.  I was happy to try it although my hunch is that isnt my problem but 48 hrs in I am not feeling any different (It apparently can start to work quite fast), the side effects are similar to some of my original symptons so not sure now whether I feel some of these due to the underlying condition or the PPI - and I have to come off it 7 days ahead of the endoscopy anyway (although on the latter point I have received conflicting info) but dont want to risk masking symptoms (which I understand is the risk) if putting myself through the endo so will stop taking it today or tomorrow.  

I will get a tepehone appointment was a specialist or consultant 4 - 6 weeks after that which seems a long time but I know waiting lists are at an all time high.  I am worried on so many levels: that the endo wont show anything and I will be further delayed in getting a diagnosis for a cancer that might be growing but also that it will show stomach or other cancer and if it does, the delay in treatment I might experience.

I can be quite positive when I am not actually experiencing pain but when the pain in my back comes on (and neither I nor investigations can discover what might be the cause of this, which is by far the most worrying symtpom to me), I just sink mentally.

i keep telling myself I have had clear ultrasound/chest x-ray/CT and bloods (more of those due tomorrow) so be positive but then the gnawing pain in my back starts and I just cannot think of a single innocuous reason for it.  I am still worried about pancreatic cancer as I know Ct scans are only accurate in about 70% of cases and in the remaining cases endoscopic ultrasound is the next step but I understand that is only offered at a hospital in London in my area ( I am in the South East) and only on a specialist referral so if the endo. i am scheduled for doesn't show anything, I guess that might be the next stage but will probably takes further weeks.

Well, I bet you are sorry you asked now .  Possibly a case of too much information but thank you again for asking and it does help to tell someone your worries.  

Bluebear x

I’m so sorry you’re still feeling so anxious, but try and be reassured that all your tests so far have been positive and that you will be seeing a consultant soon. Things are moving forward for you, albeit slowly, so try and take comfort in that. I know how horrible the waiting is, it’s almost the worst bit. 

Coincidentally, we’re in the South East too. 

Podge.x

Out of interest, how did you get your results?

podge.x

The doc phoned with my CT results as she knew I was hyper anxious.  This was only 48hrs (not inclding Sat/Sun) after the scan so very quick, so I was fortunate in that regard.

Bluebear x

Just to put your mind at ease modern helical or spiral cts have an accuracy of 98 percent most of the information on google is so out of date x hope this helps

Thanks Alfiemoon2008, I expect you are right  (although I do check the publication dates of research papers I read) and  things are hopefully progressing all the time in terms of disgnostic tech!

Best wishes, Bluebear