Pancreatic cancer fears

Hello everyone

I am new here and reading others' posts to the forum I have been both terrified (by the heartbreaking scenarios some are facing) and encouraged (that I am not alone in my fears and all-consuming anxiety).   
 

I am a previously fit and healthy female of 54.  Since Christmas I have been experiencing a range of symptoms which have worsened over time: mild indigestion, dull ache in right side under ribs and more recently the same  in my mid-back, tiredness and now some albeit minor weight loss  all of which, seem to me, based on extensive online research, to match with pancreatic cancer and very little else.  
 

When I first saw my doctor at the end of December she thought I presented with symptoms of  all too common gallstones and I was reassured.  She referred me for bloods and ultrasound, mainly  for my peace of mind.  Other than slightly raised amylase  my results were normal and on a repeated blood test the amylase had lowered which was further reassurance.  The ultrasound showed no gallstones and a normal thin-walled gallbladder.  Although still experiencing intermittent symptoms, I felt it might just take a while for things to settle if my gallbladder or pancreas had been irritated.  However iby mid Feb my symptoms seemed more frequent and the dull ache in my side although not constant had spread to my back.  Also I was finding I am less hungry, so  I went back to the doctor (was seen by different doc) who referred me for a chest x-ray (which was clear) and a CT scan which I had yesterday,  
 

I fully understand the dangers of Googling symptoms and also, I am aware that at the moment - in lockdown, with time on my hands and a lack of the normal distractions - I am probably hyper-focussed on my symptoms  but they match so well with pancreatic cancer, particularly as they  have steadily worsened.  I also know it is one of the most difficult cancers  to diagnose, frequently not picked up by initial diagnostics  and also to treat so I am terrified and already trying to prepare myself mentally for the worst news.

Just wondered if any of this resonates with anyone else.

Thank you.

Parents
  • Had my symptoms 2 yrs 3 months feel so unwell floating pale stools pain in stomach and back x gastriscopy colonoscopy full body ct scan stool elastase test amylase tests plus many other blood tests all normal doc hasent a clue what it is apart from ibs x I'm convinced its PC just waiting to die feel so ill 

Reply
  • Had my symptoms 2 yrs 3 months feel so unwell floating pale stools pain in stomach and back x gastriscopy colonoscopy full body ct scan stool elastase test amylase tests plus many other blood tests all normal doc hasent a clue what it is apart from ibs x I'm convinced its PC just waiting to die feel so ill 

Children
  • So sorry to hear that. 
     

    I am realising just how many people dont get a quick or definitive diagnosis for worrying symptoms of this sort.  Having been lucky enough to have had good health until the onset of my symptoms I had naively assumed doctors mostly have the answers but seems inot.

  • My dad was a GP, & taught me that doctors don't know everything, but they know a hell of a lot :-).

    The digestive system is incredibly complicated, and there are so many things that pains etc. can be. Also, PC can be very hard to diagnose, so it may take some time for you to get an answer.

    i'm trying to trust the process (my tests have become more specific as my year of illness has gone on), as I can't do much else. I'm sometimes convinced of the opposite - that it's just the back end of a bout of pancreatitis, & that I'm wasting everybody's time.

    Isn't it strange how people react differently to this stupid situation?

    I wish you the best.

  • Hi WilliumBill,

    Thanks for your post. I also switch between being convinced mum is on deaths door to thinking she’s malingering and just needs to eat a big cream cake 

    I’m finding the waiting for results really really hard to bear. Mum’s a recovering alcoholic and I’ve been staying with her since she broke her hip 6 months ago as she can’t cope alone and won’t accept help from anyone else. I’ve watched her deteriorate and I’m pretty convinced it’s cancer, although I do wonder if she’s lost so much weight just from stopping drinking ‍♀️

    We really just need to know now. I miss my family, my husband and kids, and I want to go home at some point, but don’t feel I can if she’s potentially seriously ill. Mum’s also recently been told she has a detached retina, double cataracts and macular degeneration in both eyes and is now effectively blind and deaf - but she won’t entertain getting treatment for that if she’s got cancer.

    Everything hinges on those results but they’re taking their own sweet time in arriving!

    Podge.x

     

  • Hi Podge,

    what a distressing time you are having. I know the sense of helplesness when a loved one is ill, & you don't have the answers you want. I can't however imagine how awful & lonely it must be in your situation, away from husband & kids, coping on your own. I have immense respect for you. Mrs. Williumbill looked after her mother for the last 2 years of her life, but at least she was at home. I hope you get the results soon, & that they bring  good news.

    p.s. From one of your earlier posts, i see you have retained a sense of humour. Personally, i believe this is really important in keeping yourself sane. 

  • Thank you for your kind words. They mean a lot.

    I’m keeping everything crossed that your results are positive. Let us know how you get on. Thinking of you.

    Podge.x