Possible Lymphoma and Biopsy

Hi Everyone, 

Like anyone I worry! Basically I found a lump in my neck in January. When I came back to uni last month I went to the doctors who had done some bloods that found my liver and white blood cells were a little elevated. So the doctor had a fell and put me through on an urgent referral to see a haematology consultant. Today I had that appointment. The doctor said the lump wasn't that big and that my bloods suggested it was reactive. He has told me I will have an ultrasound with a possible biopsy and will then have a phone call appointment with him in 3 weeks. My concern is this is still fast paced and if he thought it was nothing I wouldn't be having an ultrasound. I guess I'm worried. I also feel rather confused as I don't really know if that was a positive or negative appointment. I am extremely tired and am currently on a placement in a school and finding it quite tough. 
 

I want to know your experiences of everything so please if you feel comfortable I would love to hear them. 
 

Robyn xx

  • Ash 

    I'm so so sorry you had to go through all the disregarded trauma until you got the news you are right it's better to start at the top than the bottom yes I can't wait to close the book on waiting thank you so much for taking the time to reply to me I wish you every success in your treatment. 

    Sorry to vent on here just don't have anyone to talk to 

    Chloe x

  • Hey ! 
     

    Better to vent than keep it all in. Worry is worry and it can't be helped. Try your best to shut off especially night time and everyday is a day closer to getting to the bottom of it all. 
     

    I'll be here to listen regardless. 
    Keep in touch. 
     

    thank you! I'm going to enjoy my first Mother's Day on Sunday as I'm feeling better now from my last chemo. Hope to be spoilt rotten ha! 

    Take care. X

  • Awww Hope you have a lovely 1st mother's day I'm sure you will get spoilt rotten, I do by my 3 boys

  • Oh god that sounds so frustrating for you, It's crazy to think you have a 12cm Tumor and they kept neglecting to pick it up. That's the thing they say mine are less than 1cm but they make my neck feel cramped and so uncomfortable. They have never grown from when I've noticed them, my submandibular one is the largest longer than 1cm hard doesn't move but I have a cavity there so hoping it's that But dentist doesn't think so. I've had an ultrasound on my lymph nodes in armpit and briefly on neck and they've said it's okay I have a supraclabicular one because it's not bigger than 1cm even though Google says always always check it out (my baby (he's two not a baby lol) has one so it terrifies the poop out of me). Mines about 4mm so not huge nor won't go anywhere although it's very movable!!
     

    breast pain is one side, I'm not too worried about lymphoma but maybe more concerned about breast cancer as everything is one breast on the left same side as bone pain and lymph nodes I am due to have my cysts examined in a couple weeks / I've stopped feeding and will go for a private scan (if I can save enough) in April if nothing goes further. 
     

    Your daughter sounds lovely, there's nothing to make you feel better than seeing your baby smiling and giggling away! So glad you have such strength!!

     

    I would love. A CT but I feel like doctors are super strict with giving these out but I feel something is off!

     

    happy Mother's Day, I hope you have a wonderful day. 

     

    Thank you for messaging me x x 

  • My GP appointment was a big fat fail. Was so pointless so don't really know where to go from here x

  • Oh no!!!

    We're they just dismissive or did they tell you what your symptoms could be instead? I would recommend you ring again tomorrow xxx

  • He hadn’t even looked at my notes before so I had to try and explain everything. He had a listen to my chest then he was like I’m not gunna get you to do an xray or anything as I wouldnt want to expose you to unnecessary radiation but you can get swollen glands in the lungs. He wanted to do an ECG tomorrow but its a little late notice for my placement but then didn't want to do it next week because if it was serious then it would be silly to wait. So we didn't go on from that. So I was like well can we do anything about the tiredness and weightloss as I’m finding it really hard on placement and he was like well there’s no obvious cause so I can’t really do alot. Like I know the ultrasound report says nothing sinister but I still would like to have my issues dealt with as I'm finding it incredibly hard when I'm so exhausted all the time x

  • Hi robyn.

    I am jus giving u a lil message to see how you are and how has your recent appointments went, if you would like to share with me how they went and how u feel that would b great. Still here if u need to talk about anything!!

    Georgia xxx

  • Hiya, 

    Had an ultrasound on Tuesday and was told nothing looks sinister and so a biopsy was not done. As much as I am glad to hear this news, it doesnt get me any closer to an answer for my symptoms especially when they seem to get worse and not better. I went back to my gp as it is starting to affect my breathing but found it a really pointless appointment xx