Possible Lymphoma and Biopsy

Hi Everyone, 

Like anyone I worry! Basically I found a lump in my neck in January. When I came back to uni last month I went to the doctors who had done some bloods that found my liver and white blood cells were a little elevated. So the doctor had a fell and put me through on an urgent referral to see a haematology consultant. Today I had that appointment. The doctor said the lump wasn't that big and that my bloods suggested it was reactive. He has told me I will have an ultrasound with a possible biopsy and will then have a phone call appointment with him in 3 weeks. My concern is this is still fast paced and if he thought it was nothing I wouldn't be having an ultrasound. I guess I'm worried. I also feel rather confused as I don't really know if that was a positive or negative appointment. I am extremely tired and am currently on a placement in a school and finding it quite tough. 
 

I want to know your experiences of everything so please if you feel comfortable I would love to hear them. 
 

Robyn xx

Parents
  • Hey! 
     

    I had no symptoms of cancer but found a lump on my neck. My liver and spleen were checked with ultrasound and they were normal. My bloods were taken frequently and I was always told no further action needed. 
     

    the one thing that worried me was that I had just given birth and the lumps were totally painless. 
     

    Finally - after months I was listened to and just before our first family Christmas I was diagnosed with stage 4 Hodgkin's lymphoma bulky disease. 
     

    I don't want to worry you but I honestly feel be reassured that everything is quick paced, the experts will know more when you get an ultrasound and biopsy. 
    firthermore, the treatment is so effective for most and I am being cured even though it was in my lung and the nodes are massive. The treatments out there are amazing today! 
     

    hope you're doing okay otherwise - take it easy and follow your gut.  

  • Thank you for your reply! I am so sorry to hear about your diagnosis, I hope you are ok. I do feel like something is wrong, i'm so so tired all the time which a bedtime of 7pm for a 22 year old i'd say is abnormal and also I am losing a bit of weight not loads but my clothes are getting baggy and if anything ive eaten so unhealthy recently i wouldve thought i'd put on weight! I also feel like my breathing is a little funky! 

     

    Take care! Xx

  • I'm 27 and a primary teacher (don't know if that's what you are doing) 

     

    I never listened to any normal tests I never felt relieved that they kept telling me everything was normal. I always felt filled with aniexty and I had a cough in the end I couldn't shift. Turned out I have 12cm node in my right lung too. They blamed covid - always negative tests though but no one would come near me. 
     

    I felt the knowing was easier to handle than the not knowing. I wish people urged me through quicker. 
     

    I am almost half way through treatment the now and already my lumps on my neck have disappeared and the ones at my collarbone are softer at least. 

Reply
  • I'm 27 and a primary teacher (don't know if that's what you are doing) 

     

    I never listened to any normal tests I never felt relieved that they kept telling me everything was normal. I always felt filled with aniexty and I had a cough in the end I couldn't shift. Turned out I have 12cm node in my right lung too. They blamed covid - always negative tests though but no one would come near me. 
     

    I felt the knowing was easier to handle than the not knowing. I wish people urged me through quicker. 
     

    I am almost half way through treatment the now and already my lumps on my neck have disappeared and the ones at my collarbone are softer at least. 

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