I'm not asking for someone to diagnose me. I'm currently in contact with my GP and I'm still waiting for a referral for ENT (five months so far). I wanted to share my story and see if anyone has had similar experiences. I've been feeling quite alone with this, to talk about it with people who may have had similar experiences may help. 

About eight months ago, I got a lump on my neck. My ears would block constantly, swollen eyes, dizziness, tiredness, freezing, none stop headaches/migraines. I've been given nasal sprays, antibiotics, blood test for thyroid - nothing worked. I had a wisdom tooth removed and my headaches did reduce, but never left. I returned back to the doctor and received my referral to neurology and ENT (five months ago). I received an ultrasound scan which they said didn't look cancerous, but definitely swollen (five months ago).

I noticed myself getting sicker in the last week. I rang a pharmacy at the weekend and explained my swollen lymph node on the right hand side of my neck is sore, painful and has doubled in size. The opposite has swollen and I have a new lump on my thyroid gland. They informed me to ring 111. I did and they told me to speak to my GP the next day (Monday). Monday was my worse day. I couldn't eat, I was in pain and all the rest of the above symptoms. I can cope well for work but spend my time at home resting. I noticed areas of my body getting itchy (still occuring) - particularly on lymph glands. As I itched the back of my left shoulder, I noticed it had swollen and opposite side hadn't. An hour later, the other side was swollen. My collar bone started to hurt, behind my ears, upper back, lower back, armpit and groin (this felt achy). I've been having pain in my chest, centre - to the point where it is too painful for the shower to spray on my chest. This can reduce my appetite too. These areas are still uncomfortable now and if touched, they hurt. I'm waiting on my blood tests now and my doctor has made an emergency referral for another ultrasound.

I do not have a diagnosis and I'm hoping to get one soon with help from the doctor and ENT. I just hope I'm doing everything right what I've done so far and any stories or advice is most welcome.