Welcome to Cancer Chat, Laughpuddlemum.

I'm sorry to hear that after your daughter had a beginning tumour removed, a biopsy has revealed that another one appeared in her breast now.

And while I understand why you're so concerned, try to take heart from what the consultant said as far as them being simply fibroadenomas.

Hopefully, others who're in a similar position will be here shortly with words of advice and support.

With best wishes to you both,

Renata, Cancer Chat Moderator

Hi I've also got a daughter aged 17 very recently been diagnosed with a Phyllodes tumour (uncertain) in her left breast and due an operation next Thursday ( in 7 days) she has also today found another significant lump in her right breast. I wanted to ask you if you wouldn't mind sharing any information about the operation or treatment following this. I'm taking her to gp tomorrow so she can get other breast checked (as the hospital only did ultrasound on left) so to get this lump referred as well. Any advice greatly appreciated. She has to do all her appointments alone as hospital won't let me in due to her age x

Of course. It's such a rare tumour that it is hard to find do someone to talk about it with. Are they uncertain if it's a pyllodes tumour or the grade of it ? 
With all pyllodes tumours, relevant if they are benign, borderline or maglinant they follow the same treatment and have to remove it and at least 1cm margin all the way round because of associated risks. On my daughter's first operation (aged 15) they were able to make an incision about 6 cm long and take out the lump. The second one was more difficult and they had to cut all round the nipple, take out the tumour and some healthy tissue as well. Her last operation was in February and she has told there still might be a recurrence so she has to have 6 monthly scans for next 5 years on both breasts. The tumours are also in seperate breasts which they also said was extremely rare.  The operation is done under general and then rest, no heavy lifting for a few weeks. The breast will bruise very badly after and your daughter will need painkillers. 
After the last operation, my daughter had a fever and was in a lot more pain and ended up back in a&e and further checks indicated a infection in site so she was on antibiotics.  Keep a close eye on after her operation. They will send off the lumps to then confirm that she had the pyllodes tumour, as they are very distinct looking with a leaf type pattern. 
 

If it is a pyllodes tumour ask advice about contraception and we were told that she could not have the combined pill with increased risk factors. 

I hope this helps and good luck to your daughter as it's such a daunting time for them. It's frustrating that there is so little known about these tumours in general and then even rarer in young women as they are usually seen in pre menopausal / menopausal women. 
 

Please ask any more questions if I haven't covered anything. I may not know the answers but can listen too. My daughter is 19 so a similar age to your  daughter and would be happy to talk to your daughter as well if it would help.  
 

Roo 

Thank you so much for your reply that's so very helpful. I spoke to both the gp and breast care nurses. They will still proceed with her operation on Thursday and will do an ultrasound on the other breast within 2 weeks to determine if this is also of concern (it feels the same just located underneath rather than on side).  The first lump found they are treating as Phyllodes (from what they could detect from biopsy) so have graded as b3 which they said is uncertain but we will know more once it's removed. Your reply was very helpful and gave me lots of tips on things I hadn't considered so thank you so much. I'll let you know how we get on in the coming weeks. A x