Expecting possible breast cancer diagnosis / Sore hip

Here for the first time. 38F.

About 2ish weeks ago, I found what felt like a thickened area of my breast. I was at a point in my cycle where boobs do things like that, so I waited until a few days after my period to ring the GP when it hadn't gone down. Saw GP on Friday, he was upfront that there's about a 4cm lump (!!!), and in his experience it's suspicious. He ran me through the list of benign lumps, and why it doesn't seem to be those. Very briefly discussed the kinds of cancer treatment there are. Said he hopes he's wrong, but my overwhelming sense from the appointment was that I'm bracing for bad news. Of course, I'm now waiting for my breast clinic appointment. 

Googling has actually comforted me somewhat: knowing what to expect at the breast clinic and if it is cancer, what that all means, what might happen logistically. What's freaking me out is that I've had on and off hip pain for years (since my teens), and it's acting up now. It's a kind of discomfort where I feel the need to 'pop' my hip a lot, and some low level pain, nothing that's ever bothered me that much though. It's the kind of thing that happens when I exercise either too much or too little, and usually lasts a week or two before going away. 

BUT, I foolishly googled "breast cancer hip pain" and now distractingly anxious that I have metastatic breast cancer, when it hasn't even been confirmed if my newfound lump is cancer or not. 

I know, of course, that no one here can tell me one way or another, but maybe some of you have experience with the waiting for diagnosis, and the fears like this that can haunt. I realise that if it is cancer, I'll have a lot of this kind of waiting, and wonder how on earth I can learn to handle it well, maybe even gracefully? Even if it were some kind of super terminal cancer, I'd feel a bit silly spending the final whatever-amount-of-time I had worrying about the technicalities of exactly how bad a diagnosis could be.

Any advice welcome. Thanks everyone :,) 

  • [@Kay-D]‍ So glad your appt went OK, though sorry to hear you have some unanswered questions - do you have a follow up appt? x 

  • Hi [@Iz_rey]‍ 

     

    That must be a bit of a weight off your mind, good that albeit dipping into savings, when your sat around waiting I would say definitely worth it to at least have some knowledge.

    Still a wait for your other appointment though isn't it.. was it the beginning of March?

    Mine is a wait and see, No biopsy done so that was good, but consultant then mammogram then ultrasound, doctor said it was lobular something or other, I'll know properly when I get the letter, but it is lobular pain which I think they said lobular neoplasia!

    So pleased that your alarm bells aren't ringing anymore...

  • Thanks [@Kay-D]‍ :)

    That sounds like positive news, your wait and see? 

    Yes, it's a big weight off my mind, though I'm finding it impossible to get an appointment at the breast clinic (not because of the private appt I had)

    My GP on Friday said appointment would be made for me and I didn't need to do anything, seems it wasn't and I needed to book one online. Tried to do this ealier in the week and website said no appointments available and to select another clinic, but couldn't select anything. Rang breast clinic and got passed around to various numbers, only to be told they couldn't help me as I didn't already have a booking. Got a letter today from NHS saying I still have no appointment and to book one online. Tried to again and - of course-  website said no appointments are available.

    Just spoken to someone at NHS appointments on the phone, who said they aren't able make appointments at that clinic and they'll pass my details on to the hospital. It's been almost a week since I saw my GP, and no closer to having a date to be seen at the breast clinic. How are patients meant to manage this? I've now spent hours trying to get an appointment, all during working hours, plus taking leave for the private scan. I feel much better since the ultrasound yesterday, but still need to be seen at the breast clinic, and couldn't really afford to have further tests privately. 

    Sorry for the rant, it's just so frustrating. I'm told it's a great breast clinic, if only I could manage to be seen...

     

  • Oh my goodness [@Iz_rey]‍  that sounds like a right palaver!

    It should have been easier for your GPs to sort it out for you, rather than you having to keep ringing round. It must be incredibly busy at the clinic, of course that's not helping you when you are also needing to be seen.

    Have you asked the GPs to send another referral.

    I hope you manage to get something sorted soon. We always know that there are others waiting and also needing to be seen, but when it is yourself worrying about getting a diagnoses or answers that all goes out the window...

  • You're absolutely right [@Kay-D]‍, thanks for the needed perspective. I did pound that out in a moment of frustration. The hospital did ring me back in the end, and my appointement is in 2 weeks. It was more the fear of falling into some admin gap, but all resolved now thankfully

     

  • Glad to hear you heard back with an appointment [@Iz_rey]‍  

     I have had a referral go askew once before myself, that was when I partially ruptured my Achilles tendon and in the end was chasing it around for months, so I understand how frustrating it can be.

     

     

  • Hi I'm just wondering what the outcome of your lump was? I'm in the same situation