CIN 3 progression and worries

Hello, I'm 37 and had a smear last June that showed mild dysplasia and HPV. I was referred for a colposcopy, which I had in November. The doctor said it looked like CIN 1 but took a biopsy. I got the result in December to say CIN 2. I was referred for a Lleetz procedure which I had in January, and I've just received the results of that biopsy to say all of the abnormality had been removed and it was CIN 3.
1. Does that mean the biopsy in November was wrong, or has it progressed from CIN 1 to 3 rapidly? I am confused by this as everything says it is slow growing?

2. I'm worried that I have an high risk strain of HPV causing it to progress quickly, and as I haven't had a different sexual partner for 12 years, I'm worried this must mean my body has been unable to fight off the HPV and therefore there is a high chance it will just start the cycle again now the abnormality has been removed? What can I do to prevent this other than have my follow up smear in 6 months? 

3. Is there any risk that there would be other bits of CIN 3 they didn't removed when I had my lleetz?

4. Lastly, when the doctor did the procedure she didn't realise the machine was on and I had a sudden terrible pain - like a sharp stab and electric shock inside - that made me jump off the bed. She was mortified and apologised profusely, but might this have done some damage internally and should I be worried?

Thank you very much in advance. 

  • Hello Loubell1,

    I can understand that your experience may have caused confusion, but it's good to hear that all of the abnormalities were removed in January. More advice after treatment is here and monitoring the cells with regular smears is the best way to keep an eye on things. Speaking to your colposcopist is the best way to make sure your concerns are addressed.

    Best wishes,

    Moderator Anastasia

  • Hi Loubell1,

    Did you ever get any answers on the fast progression from CIN1 to 3? I too was diagnosed last year with HPV and no abnormalities. This year I have been diagnosed with HPV and high grade severe dyskaryosis. The rate of growth over the past 12 months is obviously concerning me and raises the same question. My Colposcopy is in 4 days time. It would be good to hear how you have got on and if you have learned anything new since your last post.

     

     

  • Hi, hope you're well!

    im going through a similar experience now and very anxious and worried! :( do you mind sharing your outcome?x

  • Hi,

    Yes. So, I later learned that the cells don't necessarily progress from stage CIN1 through to stage CIN2 then CIN3 etc. You can just go from no abnormalities to CIN3 and when this happens it is generally a very small area which is treatable.  I went to have the cells lazered off and the stress, worry and anxiety was actually worse than the treatment itself. The nurses asked me a couple of times if I was a smoker but i'm not. So, im not sure whether smoking has something to do with the severity of what they find but I guess it doesn't help. I explained that i suffer from severe stress and anxiety and they advised on ways for me to get that under control because it does not help your body fight the unwanted.  The nurses were brilliant. They confirmed that they had removed everything but sent a biopsy off to make sure and the results confirmed everything has been removed. I went for my 6 month smear 2 weeks ago and it was actually painful I think due to the scar tissue but only lasted 10 seconds and the nurse said everything looked normal but i'm still awaiting results. Since the event i've worked on strengthening my immune system and taking greater care of what i put into my body, making sure that I get plenty of sleep, drink plenty of water, eat well and reduce my overall panic and stress. So far so good, i've had no illnesses and my body does appear to be fighting off gripes so much faster. Understandably you are anxious and worried but do know that pre cancerous cells are actually very normal and and on the whole are easily treated. See if you can distract yourself whilst you're waiting for treatment, try not to think about it and bear in mind that what you're experiencing now is all for preventative purposes which is a positive thing. Oh one thing to note is that I got really bad gut issues and bloating for a few months after my  treatment which could have been due to the level of anxiety and stress that my body was experiencing. I've heard similar stories from other women so it's important to finds ways to relax and reduce your anxiety the best you can. I hope that helps.

  • Hi, thank you for your reply! 
    It calmed me down a bit I keep telling myself it's preventative too but I did have cc symptoms for about 2 years and late for my smear for quite a few years..so worried while awaiting biopsy results, it's been a week but I feel like I've aged a hundred years and time is dragging so bad even tho I work 12-16h a day now to stop myself from crying but still feels like it's been years not just one week :cry: the doctor that did my loop had very mixed wording, she said she doesn't think it's cancer but won't know what exactly it is until biopsy comes back and then she said I might need another treatment but didn't say what like chemo or another loop or completely ANOTHER plan of treatment, I'm so anxious having panic attack and being sick from worry :cry: that's so good that you're taking care of your body better now, I'm also eating much healthier now lots of greens what we eat is so important wish we were taught that at school! 

  • Oh gosh. I feel you. Try your best to get the anxiety under control because that plays a massive role in how your immune system fights off infection. 12-16hrs a day is a lot of work, make sure you don't run yourself into the ground. Sleep is cruicial for the body to repair itself. They said the same thing to me about possibly needing another treatment and that is if they don't manage to get all of it in one go. Again, it's pretty common so don't panic yourself over that. Also, that fact that she doesn't suspect cancer is positive but obviously they prefer to await under the microscope results so just keep reminding yourself that it's all in hand and in the meantime work on enjoying your life. Sending you big hugs. X 

  • Hi, thank you for your kind words. Ahh I'm definitely feeling tired now after so many double shifts, and it didn't make the time go faster tbh! Today is exactly 2 weeks since my loop & biopsy, feels like it's been years! I'm so drained both physically & emotionally at this point. :( My heart is jumping out of my chest whenever I see my phone, so scared that it'll ring to come in to discuss the results! Every day I'm hoping it'll just be a letter but oh so anxious I've lost control over myself.. how long did it take you to receive the biopsy results?x I was told 2 weeks but still nothing, getting even more worried now :sad:

     

  • Did you get your smear results by the way?? Xx

  • It took around 6 weeks for my results to come back I think. By then i'd forgotten about it. When I was talking to the nurses they advised me to see my doctor over the anxiety because they can give medication to help me gain control and calm my emotions. Even if only temporary it may do my body more good than being in a constant state of panic and anxiety. I'm not big on meds and not really happy taking them but what they said did make sense and had I not have had other strategies to help my anxiety I would have run with their advise as a short term, temporary solution. This may be a possibility for you that you could benefit from if you are struggling as living in this constant state of fear and anxiety is no good. Maybe even just speaking to your doctor again they may be able to put you at ease with further discussion or a short term solution. 

  • No I havn't had them back yet. I don't expect them for another 6 weeks and i'm not worried. If something is there they can crack on with treating it again. Or that's what I tell myself. But tbh I'm just assuming i'm ok. I havn't sensed anything off about myself and the nurse said it lookes good where as last time she did pick up on something so I'm just getting on  with living my life. I don't think about it. Speak to your doctor again won't you. Try to get a bit more support from them. X