2 week urgent referral today

So today I saw a Consultant about my ovarian cyst on a 2 week referral. No up to date notes from my gp's surgery had arrived. He said I should have a ct scan in a couple of weeks but would scan me again in 3/4 months. In my mind why do I need a ct scan then? He said that the cyst looks to be benign but without imaging I don't see how he would tell (I'm guessing he just had my gp's referral letter with some details about my previous scan). Also I was told I should've had blood tests before I arrived at my appt (I told him my last ca125 test was raised - 41 when I had it alongside my ultrasound scans a couple of weeks ago). I was sent for more bloods whilst at my appt today. Feel stupid & frustrated that I didn't ask more questions. My husband had a go at me because of this too - feeling miserable & not sure what to do next? Sorry for the ramble!

  • I'm being investigated for ovarian cysts too. The gynaecologist I saw said she didn't think it would be cancer based on my history and my age but wanted to do scans and more blood tests just to make sure. I had already had an ultrasound and blood tests which showed solid bits on the cysts and elevated CA125. I also had an endometrial biopsy.

    You're not stupid. This stuff is hard to process. I feel really adrift myself. Just waiting on results and further consultation. I think they tend to monitor cysts they don't feel need surgery yet though i have no idea how they know anything about cysts they haven't imaged.

  • Hi Lyns21

    Thank you so much for your reply, it's good to know others are feeling anxious too! Had a call first thing this morning with an appt for a CT scan tomorrow. Just also discovered some previous blood tests relating to my liver are abnormal. I have had a problem with alcohol for some time. The Consultant yesterday seemed more interested in this yesterday tbh. My worry is that alongside this cyst I also have a liver problem. All my own doing. Will keep posting on this site.

  • A CT scan scheduled for tomorrow. Is it unusual for a gynaecologist to ask for chest, abdomen & pelvic scan even though he thinks my ovarian cyst isn't sinister? Last blood test showed raised ca125 levels at 41. Waiting for new blood results which were taken yesterday at my consultation. 
     

    Feeling very afraid about what will be found on the CT scan as the gynae referred to my drinking problems, which I'm trying hard to reduce. 
     

    Any info from anyone would be welcomed!

  • Hello,

    I hope you don't mind me messaging on here and I hope all is ok with you now.

    I am going through the same issues as you. I have had bad bloating and a missed period. I had an ultrasound and there is a 5cm cyst on my ovary. I have to have a CT scan and waiting for blood results. 
     

    I am going out of my mind it's cancer and it's spread. I hope you are well and would love to hear from you.

     

    shauna x

  • Hi Shauna I'm at the waiting stage for blood test results. I'm 54 and went through menopause a couple of years ago. I've had a scan as was experiencing digestive issues and a dragging feeling down below, just didn't feel right. They found a small complex cyst on my left ovary but couldn't see my right one because of bowel gas. I hope everything goes ok for you. X

  • Hi Gracesmum, 

    thanks for your reply.

    I have had the bloods as well and they have come back but doc not looked at them that. receptionist informed me that she can't see any red flags and if there were to hospital would have called me. I still can't settle though. 
     

    I have no idea what type of cyst this is but the radiologist said it was one that would go away on its own but due to its size my doc will send me to gynae. The doc says this was not what they said on the report which has confused as she was adamant and almost rude and dismissive about my concerns. 
     

    doc said it needs more investigation but was also quite rude and dismissive to my concerns. I don't know if this is a good thing? 
     

    I am tying myself in knots with worry and have basically written myself off! 
     

    Are you having a CT scan?

     

    thanks,

     

    shauna 

  • Hi Shauna

    i know what you mean with the not settling, my tummy is in bits which isn't like me but it's the unknown at the moment isn't it. Think I will feel better once I get the blood results as silly as that sounds. I feel reassured that my cyst is only small so it can't be anything nasty? 
    my regular Dr I refuse to deal with so been seeing another one is fantastic and on the ball.  I think for me next step will be at the hospital and take it from there. 
    by the sounds of it for you hopefully the blood results will be given to you tomorrow and hopefully mine will too. 
    Are you post menopause as well? 
     

     

  • Hiya,

    No I am 36 nearly 37 with 2 little boys. I have always been regular with periods since I started them at 11 and I have only missed one month and no problems before then.

    I only went to the doc cos of bloating so goodness knows how long mine has been there. It's only 5x7cm not huge but big enough to be looked at. 
     

    Hopefully we are both worrying over nothing and you're right the not knowing is torture x

  • I had a simple ovarian cyst once which was found during one of my pregnancies then when they scanned again it had vanished. I'm a cysty person anyway, got them liver, kidney and spleen but all simple ones. Had breast ones too but they have been drained. 
    Any idea when you might get your CT scan? I think what worries me is that my sisters have had breast cancer and of course I've been Googling which was a massive mistake but I think most people do, I've stopped that now. 
     

  • I am having my CT scan tomorrow. I was put on the 2 week referral and they called me that day and booked me in. 
     

    as far as I know I have never had a cyst. My dad of cancer at 47. It was Hodgkin's lymphoma and he had been ill before then but I'm just convinced the same will happen to me. 
     

    ive tried to stop googling but it's like I'm addicted to finding someone like me who has had a good outcome. 
     

    have you any apps arranged?