Endometrial scan lining 21.1mm awaiting 2WW referral

Hi, 

I went for a US Pelvic scan yesterday after prolonged heavy bleeding, with a particularly bad episode in the lead up to Christmas. (I called my GP on Dec 23rd, as bleeding was so heavy and approaching 2 weeks, but as as I was ill with Covid I could not attend a scan any earlier than Jan 1st when my isolation ceased. However, my Dr was reassuring and had said it was more of a precaution than urgent concern, as they assumed it was linked to my HRT, so I wasn't too anxious either) - Although following this I had another incident of really heavy bleeding on Boxing Day, early hours, but we didn't call for help as I had Covid. This had panicked me but the next day it seemed to finally stop. 

A bit of history - I've been on HRT for many years as I was born with a rare hormone issue and I'm under endocrinology at a hospital in London. I am 36 and have three young children. I've always had issues with HRT and so assumed it was yet another blip in the road. 

Anyway during the scan yesterday the sonographer said that the lining was a little thick but it was like that all the way around. She then scanned my ovaries but only found one but didn't seem to concerned and said that I'd probably have to re-evaluate my HRT. However she continued to question me and seemed a little concerned by my prolonged bleeds, the timing of this scan (monthly withdrawal had stopped the eve before) and the rise in clotting I'd explained to her. 

I then left and she said I'd hear results in a week or so. Within less than an hour of leaving the hospital my GP called and said he's made an urgent referral and that I needed to know it was under suspicion of cancer and I should hear within a week of an appointment, to call back if I didn't but that I will definitely be seen within 2 weeks by a cancer pathway gynaecologist. 

I asked why I was being referred so urgently and he said my lining was 21.3mm and coupled with my history it was a high marker for concern. I'm now severely anxious and assuming the worst. I lost my grandma to ovarian cancer at 57 and it's filled me with fear. 

In order to calm my anxiety has anyone else had a lining this thick? What should I expect from here? I'm so scared and trying to put on a brave face in front of my daughters and husband but inside I'm panicking and can literally think about nothing else since the Dr called me. 

The other concern I have is the fear of a hystereoscopy as I had one when I was younger and it was so horrific they had to stop and I can't bear to think about going through that again, but the Dr told me they will be taking biopsies etc.

Just really frightened and hopeful someone can help me to remain calm. It's just not the news I was expecting yesterday and everything I've read about such thick linings doesn't sound good for me. 

  • Welcome to the forum Minnie although I'm sorry for the reason you've joined us.

    It's completely understandable to be feeling this way given what's happened but hopefully good news will come from your upcoming tests.

    There are quite a lot of discussions similar to your own so you're not alone on this journey and I'm sure you'll hear back from some of our members soon. Our team of cancer nurses have a helpline - 0808 800 4040 (phone lines open Monday - Friday between 9a.m - 5p.m) you can call if you'd like to talk things through with them as well.

    In the meantime, I hope the tips to manage anxiety on the NHS Every Mind Matters website will help keep you stay calm whilst you wait.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Any update on this ?

    im currently 27 and have been referred for a Hysteroscopy because my lining in 30mm and I'm freakin go out

     

    xx

  • Hi Natalie, 

    Sorry to hear you are going through this. 
     

    I had my biopsies last year and thankfully they were clear and so didn't follow up with anything else, they assumed it was linked to HRT use and as I'd always had clear smears they discharged me.  
     

    However they found an ectropian on my cervix and later in July I had an abnormal smear. I have been waiting for a colposcopy since October and just heard I've been lost in the system. - So currently waiting on an update on this and will have a repeat smear in July.

     

    I'm back in London for a scan today, due to continuing issues with heavy bleeding. Will let you know how I get on and any next steps. 
     

    I know it's scary but try not to think the worst, tests aren't pleasant but were not as bad as I had expected and I was awake for biopsies. (The waiting on results was worse!)
     

    Hope this helps you feel more positive about it all.