Throat/neck cancer or something else?

Hello, my name is Becca I’m 25 years old and I just wanted to share what I’m currently going through on here. Looking for some advice or even to just talk to people who are experiencing similar things (even if you are not I’m still here to talk).

 

I will try to keep it as short as possible but please bare with me...

It started about 5 months ago now, I have found COVID situation quite stressful and I got a new job working from home, just a lot of changes and anxious times. I’ve always had issues with food I get reflux a lot but this time was different. My reflux was quite bad for a little while but then one day I started to feel like my throat was closing up and I had that sensation of a lump in my throat. 

Progressed to lymph nodes swelling up biggest ones are on the right side of neck. Phoned doctors had a phone call then saw a nurse who wasn’t sure though it may be an oral infection. Weeks went by no improvement, phoned doctors again, had another phone call told me to keep taking Rennie tablets. No improvement again, my throat got so tight and heavy I had a panic attack and had to have paramedics come out and see me. 

Finally got blood tests done, came back with high IGA levels which they said could be my body reacting to swollen intestines. They suspected Celiacs disease that came back negative, maybe Crohn’s but they can’t diagnose that without a colonoscopy or endoscopy. 

Fast forward, I had a US in my neck it showed reactive lymph nodes, then ENT specialist called me and said that they don’t want me to come in as they aren’t screening people for COVID who have a endoscopy done so it’s very high risk. He’s put me on gastro resistant tablets for 8 weeks if no improvement then he will bring me in for more tests. 

I have a lump that I can see at the very back of my tongue (only visible if I push my tongue out) and I have some blisters all over my throat and tonsils, kind of like a pale colour no puss or anything it’s just incredibly uncomfortable. 

I have a tight throat feeling a lot, it’s hard to swallow at times, a lot of effort to talk and I’m feeling tired and fed up. 

 

Just want some answers, not sure where I go from here I’ve got another 7 weeks to go on these tablets but I’m just so scared it’s something sinister and it’s been missed. 

 

If you made it this far, thank you and I hope it wasn’t too much to digest. Any thoughts are welcome just be nice to speak to people who understand what I’m going through.

 

Thank you x

  • Hi I'm 27, I've found a large lump on the back of my neck near the hairline. It's around 5cm big. 

    I had incredibly painful stomach prior to noticing the lump I went to A&E as I felt like my insides were being ripped out they gave me anti gastro pills also

    Since then I just haven't felt myself my lump keeps growing its been around 5-6 weeks since I noticed the lump my stomach pain has completely gone I still feel a bit sick from time to time but I've got awful dizziness and vertigo.

     

    I'm wondering if our lumps are anything to do with a reaction to a stomach infection we may of had. 

    I have a scan for my lump on my neck in a couple of weeks. Please see a doctor. Hope all goes well. 

  • Hello,

    thank you for replying.

    So sorry to hear you are going through this at the moment, I really hope it gets better for you and you get the answers you need. 

    They said that the lymph nodes I can feel are because of my stomach but I am just so worried that they have missed something or got it wrong, because it's never 100% unless a biopsy is done. 

    I am glad the tablets settled your stomach maybe it just needs to recover for a bit and the lump may reduce.  I think dizziness is a side affect of these gastro pills I sometimes feel like that too! 
    Not very fun to be going through all of this right now.

    Have you had any other symptoms? 

    Let me know how the scan goes, I'm sure it will just be a benign lump or a reactive lymph node but if you still feel it is not right make sure you get more tests etc. Have you had any blood tests done? 

    I am going to try and give these tablets at least a month to kick in properly and then if I'm still in a bad way I think I mate pay to go privately I'm not sure I just feel quite lost on what to do.

     

    Hope you are okay, speak soon and take care of yourself x

  • Hi, I'm going through this exact same thing. How are you getting on now? Any improvement?

  • Hey, so sorry to hear you are going through something similair.

    Ive been on tablets for about 4 months now for the acid reflux, unfortunately throat is still uncomfortable 8 months on, so I am going to have a nasel endoscopy in the next 2 weeks which should show up anything sinister.

     

    hope you are okay! Try to stay positive, what are your symptoms at the moment?? Keep pushing for tests and for the doctors to listen to you if you are worried. 

  • Hi bec - glad you've got yourself booked in for tests. My symptoms right now are still that lump I'm throat feeling, feels more like phlegm now, this has improved I have to admit. I am now getting slight lower left abdo/pelvic/groin pain and my stomach is rumbling all the time. I don't know what to make of any of it or even if it's connected at all