Just an update, had my ultrasound results back today and have been signed off as no further action as it has been put down as a lipoma! Thankfully!! Hope this reassures some people xx

So glad you got your no cancer result that you wanted the wait is horrible and so glad it is over for you, I had a MRI scan on Monday and waiting for the results I try to destract myself as much as possible but its always there in the back of my head 

Hi,

I've just got back from the blood test - she said it was testing for a lot of things and there were 2 tubes but I didn't think to ask what which is annoying but I get the results in 48 hours so hopefully I'll get some answers. Doctors anxiety was only up a little bit luckily.

Reassuring they think it's all psychological, I'm sure it is. How's the sore throat now and how was your chat with the mental health nurse? Hope you're feeling a bit better but it's a shame they expect you to live with it, did they not offer any tablets or medicine to clean your throat tongue and tonsils up? Covid is such a pain with housing waiting lists that must be bad, have you called to see if anyone's with drawn from the waiting list? No worries about the reply , it's good to vent. 

Hiya, good to hear back from you. Hopefully you will have some answers soon! Not too long to wait for your results at all. You don't know what they are testing you for? Glad you wasn't feeling as anxious. 
 

my sore throat has gone, although I do keep getting it when I wake up but I'm sure that's just dry throat. I never got to speak to the mental health nurse it was cancelled and rescheduled for this Wednesday, fingers crossed I do. No medication for anything. The other night, I woke myself up in the middle of the night, my top and bottom back teeth clenched together so hard and my tongue was caught in the middle, I literally was close to crying... could this be my tongue problem? This morning I woke up and my tongue felt tight... that's a first, it loosened quite quickly so not sure wether to worry about it or not. Oh tell me about it, covid has a lot to answer for these days. Yea but no such luck! X

When my doctor booked it she said it was for glandular fever and when I searched how tbey test for it they said by a full blood count and iron levels which will also detect cancer so I'd imagine that but I should've asked for a clear confirmed response but yes oh well we'll see in 48 hours.

If the sore throat goes after the morning it's nothing to worry about but let's hope you get in on wednesday to express these worries - you could've been having a nightmare of some sort, your teeth and tongue moving has nothing to do with cancer I would think. Don't worry about it for now and tell the mental health nurse Wednesday - covid really does. Let me know how you get on x

Oh ok then. Well yes see how they come back. I have had 2 lots of FBC tests done in 4 months and all ok so I really should take reassurance from that. 
 

I keep telling myself that. Honestly I don't think I have looked forward to an appointment as much as I am at the moment. I am just trying to convince myself that this is why my tongue feels funny and weird, maybe I bite it and chew it while I'm sleeping but just this one night was that bad it woke me up, other times may not be quite so bad. I mean the sensations I feel are getting better I think and fading and I'm not obsessing over them quite as much now. Will do. 
 

let me know when you have had you blood results x

Morning, my blood test results came back all normal - the receptionist said 1 2 3 4 5 yep all normal. Stupidly forgot to ask what it tested for again, am going to call the doctors again tomorrow to discuss the results and what it tested for. I definitely feel a lot better it's just these few symptoms that won't go. 

Yeah that may be what it is, but glad to hear it's getting better. Good luck today x

Hello, 

that's great news that your bloods have come back normal. When you have spoken to the doctor do come back and let me know how it went. I am glad you are feeling better though. 
 

well the last 2 days I have also noticed that even when I sneeze, I am catching my Tongue in my teeth. I don't have these sensations when I wake up it starts mid afternoon and carries on throughout the evening until I go to bed, it's just weird. I spoke to the mental health nurse today, he has told me to take half an anti anxiety tablet a day, if it's not worki then increase it to 1 whole tablet a day and he will review in 2 weeks! I had my smear today and also spoke to the nurse about my odd nipple which she wasn't concerned by so just got to try and get over this tongue thing. Might take myself back to the doctors! Just frustrating me now xx

Thankyou, me too, just hope I can get to the bottom of the remaining symptoms - i'm a bit stuck on what to say when i book an appointment tomorrow, could you help? I just want to check what it tested for and where we go from here since there's no explanation for my symptoms.

That does sound annoying for you, it may be your anxiety and brain making you do it. Let's hope the anxiety tablets help though and you'll forget all about this soon, what was the smear for? Glad to hear the nipple was no concern. Let me know how you get on doctors, hope it goes soon x

Just ask what you were tested for and what further tests can be carried out to get to the bottom of your symptoms because it is making you unhappy! I think that's what I need to do, when I will do it I don't actually know. I feel like I have seen so many professionals that they are still going to just rub it off as anxiety! Don't really know what else to do x

Hi jm15 

I have just had a phone call with a different doctor for another opinion. He asked me lots of questions about my tongue and throat, as I have white patches on the back of my tongue he has prescribed me nystatin to treat oral thrush, and said that if this doesn't help to come back and he will take a look as this was just a phone appointment, although I didn't get seen I did feel like I was listened to a little bit more today! Hopefully this helps.

hope u are ok xx

Hello,

I called this morning and the dr who ordered the blood test is only available monday tuesday and wednesday which is annoying as i couldve booked an appointment yesterday but oh well I'll book Monday, just annoying as wanted a diagnosis before school as that's another thing to stress about.

So glad to hear a doctors started taking more notice - I have white patches on the back of my tongue too that looks like oral thrush but I didn't think much of it - might bring that up on my appointment monday. Hopefully being listened to a bit more helps your anxiety and the tablets clear your symptoms. Let us know how you get on xx

Hello,

I called this morning and the dr who ordered the blood test is only available monday tuesday and wednesday which is annoying as i couldve booked an appointment yesterday but oh well I'll book Monday, just annoying as wanted a diagnosis before school as that's another thing to stress about.

So glad to hear a doctors started taking more notice - I have white patches on the back of my tongue too that looks like oral thrush but I didn't think much of it - might bring that up on my appointment monday. Hopefully being listened to a bit more helps your anxiety and the tablets clear your symptoms. Let us know how you get on xx