Just an update, had my ultrasound results back today and have been signed off as no further action as it has been put down as a lipoma! Thankfully!! Hope this reassures some people xx

So glad you got your no cancer result that you wanted the wait is horrible and so glad it is over for you, I had a MRI scan on Monday and waiting for the results I try to destract myself as much as possible but its always there in the back of my head 

Hi [@Mumma123]‍ 

I'm glad it wasn't anything bad. I'm only 16 and I'd say I only suffer with it due to cancer and I'm fine until a symptom shows up - this third lockdown hasn't helped. That's reassuring your bowels was nothing to worry about - I hope it's the same with me. I've had a lump for 3 years in my neck that hasn't grew and has caused me no harm so don't stress, it'll be nothing especially if they've checked it. I'm just concerned as loads of other painful ones have popped up in a day along with these bowel problems. Yes, if you're feeling worried, I'd get a second opinion too as it could affect your daily life and that's worth getting an appointment over, good luck with it. You're right about fixating on symptoms and am trying not to until tomorrow. Thankyou, I'll let you know how I get on. May I ask how long the diagnosis took you for the viewer and the lump?

Jack 

I agree the lockdown is not helping!! Oh your still quite young. I am the same only suffer with the anxiety worrying I have cancer. It's good that you are seeing your doctor about these problems, they will be able to reassure you. I had my ultrasound on Monday 18th, and my results back Friday 29th, but I called the doctors to receive these results. Just remember everyone's waiting time for their results vary so try not to stress xx

Morning,

I called the doctors and mentioned my neck symptoms - she said it sounds like a minor infection. Still booked for 3:30pm today as I'm unsure as I have no other symptoms of infection. I didn't mention my bowel symptoms as I forgot but I'll bring it up in the appointment. Thankyou for helping, I'll let you know what I'm told. May I ask what makes you think you have tongue cancer? x

Morning, 

that's good that you have an appointment today, hopefully a step closer to knowing what is going on. Yes do bring it up with the doctor, but as you are young I'm sure it's all going to be just fine. Good luck and come back to let us know how you get on. 
 

Of course, I have very odd sensations on one part of my tongue, tingling/burning, dry tongue. I'm sure I can also see a small red lesion on the side of my tongue but apparently nobody else can see it professionally. I saw another doctor yesterday who I am not very keen on, spent less than 2 minutes in his office, he looked at my tongue from a distance with a torch, said everything looks normal and to basically deal with the sensations! My brother pointed out that I have seen 2 doctors and the dentist 3 times who have all said it looks fine and maybe that is just a part of my tongue. It's just so frustrating though having this abnormal sensations in my mouth! Just trying not to think too much over it but anxiety gets the better of me x

health anxiety can sometimes make us feel we're experiencing symptoms we're not, i would push for some type of scan definitely if it makes you feel better but i'd say it's nothing to worry about if 5 professionals think it isn't. it is a pain when it's a doctor your not keen on, i either feel like i'm being dramatic or wasting their time. Thankyou, I'll let you know how I got on when I'm back.

Yes health anxiety does do that! I am going to give it another week or two and see how I get on! Just based on what ur saying too, 5 professionals surely one would pick up on something. Just hate having these sensations in my mouth it's just odd haha. I feel exactly like that too! How did your appointment go? 

Hi,

I've just got back, she thinks the bowel problems are from when I had constipation at the end of December and to come back if it doesn't clear up and that the lumps are a reaction to mild glandular fever but i just don't know where I would've got that from :( she said she isn't concerned but told me to book a blood appointment and they were booked until the 1st March which I took but I don't think the doctor knew that and it's worrying me because that's so long to wait if it could be something dangerous.

Yes the tongue sensations do sound weird, let us know how it is after a week or two 

Oh that's a bit pants, fingers crossed it eases off for you soon with your bowel issues. Is there not anywhere else you can book in for bloods? We have a few places we can choose from so I managed to book mine within days, it is a long time to wait. And the waiting is very hard. Especially when you are worried. I hope it all turns out to be nothing for you. 
 

I will do, my sensations have hardly been there today but I think becuase my throat hurts it's taken my mind off it, aslong as it has nothing to do with the problem(not a good way of thinking).

Hi,

Sorry for the late reply. I just decided to suck it up and wait as I didn't see much of another option. I was going fine until a few days ago - I've started feeling light headed and cant stop yawning even after good sleep although that is a sign of glandular fever. Bowel problems and lumps have eased off a bit but still a bit concerned. I was just wondering as the blood test is booked in for glandular fever will it test for blood cells as say if it isn't glandular fever according to the test I was wondering what would happen then or would they already identify something else?

How's your tongue problems now, hope it's better for you.

Hi,

Sorry for the late reply. I just decided to suck it up and wait as I didn't see much of another option. I was going fine until a few days ago - I've started feeling light headed and cant stop yawning even after good sleep although that is a sign of glandular fever. Bowel problems and lumps have eased off a bit but still a bit concerned. I was just wondering as the blood test is booked in for glandular fever will it test for blood cells as say if it isn't glandular fever according to the test I was wondering what would happen then or would they already identify something else?

How's your tongue problems now, hope it's better for you.

Hi that's ok, not everyone can sit on these forums like I do, waiting for someone to tell me that my issue is the same as theirs and it's going to be fine haha. 
 

glad to hear some of your problems have started to ease. Not so good you are still feeling a bit under the weather. Not long until your blood test, have you tried to call daily to see if there are any cancellations to get you in sooner? I'm sure when th do blood tests they do a full blood count too, well my doctors always does a full check and thankfully they all seem to come back clear, still doesn't ease my mind. 
 

my tongue problems... well I thought it was getting better and I had a really good day the other day. Now it's creeping back in, like I feel like there's a lump at the back but Iv shown my sister and she doesn't seem to think anything is wrong and both sides of my tongue look the same! I have another phone appointment with the doctor in the morning and just see where I go from there. Yesterday I had major sore throat and white specks on my tonsils. Today they have gone and sore throat is minimal. Can't seem to stop worrying something is wrong!

Hi, aha I do worry day to day but find it's better to try my best to not give it too much energy as if it turns out to be nothing it'll be a waste. There's no cancellations unfortunately. Yes I researched and you do a full blood count to test for glandular fever anyway so we'll know then - regardless of the results I will bring up my light headedness and bowel issues. 

I'm sure your sister wouldn't risk your health just try your best to trust her. How was the doctor's appointment? Hope it went well and you got some answers, sorry to hear about your tonsillitis hope you're feeling better. 

Hiya

good way of looking at it! Oh that's good then. Not long and your blood test will soon be here and you might have some answers. 
 

I spoke to the doctor over the phone yesterday who said it's all psychological. As I have seen a "good" doctor and had many dentist visits, and they don't seem to have any concerns. I mentioned that I had a sore throat that comes and goes and she wasn't concerned, said if it was constant then she would investigate further. She has booked me an appointment with the mental health nurse to talk about my issues, symptoms and anxieties. That's on Wednesday. So other than that I'm supposed to just move on with my tongue and throat issues and basically Live with it. I'm a little bit disheartened by this becuase there must be a reason other than it's in my head for these weird tongue sensations and sore throat. In my head I'm trying to put my tongue down to constant rubbing on the back teeth and my sore throat I'm putting down to the fact we have mould growing right above my bed. Which has been reported to the housing society but with covid we are in a 3 months waiting list!! But what's these white specks on my tonsil? I'm so worried! Sorry for the long reply!

Hi,

I've just got back from the blood test - she said it was testing for a lot of things and there were 2 tubes but I didn't think to ask what which is annoying but I get the results in 48 hours so hopefully I'll get some answers. Doctors anxiety was only up a little bit luckily.

Reassuring they think it's all psychological, I'm sure it is. How's the sore throat now and how was your chat with the mental health nurse? Hope you're feeling a bit better but it's a shame they expect you to live with it, did they not offer any tablets or medicine to clean your throat tongue and tonsils up? Covid is such a pain with housing waiting lists that must be bad, have you called to see if anyone's with drawn from the waiting list? No worries about the reply , it's good to vent. 

Hiya, good to hear back from you. Hopefully you will have some answers soon! Not too long to wait for your results at all. You don't know what they are testing you for? Glad you wasn't feeling as anxious. 
 

my sore throat has gone, although I do keep getting it when I wake up but I'm sure that's just dry throat. I never got to speak to the mental health nurse it was cancelled and rescheduled for this Wednesday, fingers crossed I do. No medication for anything. The other night, I woke myself up in the middle of the night, my top and bottom back teeth clenched together so hard and my tongue was caught in the middle, I literally was close to crying... could this be my tongue problem? This morning I woke up and my tongue felt tight... that's a first, it loosened quite quickly so not sure wether to worry about it or not. Oh tell me about it, covid has a lot to answer for these days. Yea but no such luck! X

When my doctor booked it she said it was for glandular fever and when I searched how tbey test for it they said by a full blood count and iron levels which will also detect cancer so I'd imagine that but I should've asked for a clear confirmed response but yes oh well we'll see in 48 hours.

If the sore throat goes after the morning it's nothing to worry about but let's hope you get in on wednesday to express these worries - you could've been having a nightmare of some sort, your teeth and tongue moving has nothing to do with cancer I would think. Don't worry about it for now and tell the mental health nurse Wednesday - covid really does. Let me know how you get on x

Oh ok then. Well yes see how they come back. I have had 2 lots of FBC tests done in 4 months and all ok so I really should take reassurance from that. 
 

I keep telling myself that. Honestly I don't think I have looked forward to an appointment as much as I am at the moment. I am just trying to convince myself that this is why my tongue feels funny and weird, maybe I bite it and chew it while I'm sleeping but just this one night was that bad it woke me up, other times may not be quite so bad. I mean the sensations I feel are getting better I think and fading and I'm not obsessing over them quite as much now. Will do. 
 

let me know when you have had you blood results x

Morning, my blood test results came back all normal - the receptionist said 1 2 3 4 5 yep all normal. Stupidly forgot to ask what it tested for again, am going to call the doctors again tomorrow to discuss the results and what it tested for. I definitely feel a lot better it's just these few symptoms that won't go. 

Yeah that may be what it is, but glad to hear it's getting better. Good luck today x

Hello, 

that's great news that your bloods have come back normal. When you have spoken to the doctor do come back and let me know how it went. I am glad you are feeling better though. 
 

well the last 2 days I have also noticed that even when I sneeze, I am catching my Tongue in my teeth. I don't have these sensations when I wake up it starts mid afternoon and carries on throughout the evening until I go to bed, it's just weird. I spoke to the mental health nurse today, he has told me to take half an anti anxiety tablet a day, if it's not worki then increase it to 1 whole tablet a day and he will review in 2 weeks! I had my smear today and also spoke to the nurse about my odd nipple which she wasn't concerned by so just got to try and get over this tongue thing. Might take myself back to the doctors! Just frustrating me now xx

Thankyou, me too, just hope I can get to the bottom of the remaining symptoms - i'm a bit stuck on what to say when i book an appointment tomorrow, could you help? I just want to check what it tested for and where we go from here since there's no explanation for my symptoms.

That does sound annoying for you, it may be your anxiety and brain making you do it. Let's hope the anxiety tablets help though and you'll forget all about this soon, what was the smear for? Glad to hear the nipple was no concern. Let me know how you get on doctors, hope it goes soon x