Large, hard lymph nodes but GP dismissive

Hi guys, 

I've read a lot of things on this forum over the past year, and I was hoping for maybe some of your experiences if anyone has had something similar.

I'm 24F, fairly healthy generally, used to be active but since I got a full time job two years ago that has definitely slipped! A little over a year ago I noticed a large lymph node in my neck (rear right side, near the artery) that was very hard, but easy to move. I'd felt a bit rough a week before, so figured it was just the infection passing. I waited another week and called my GP. I saw a lovely nurse practitioner who ran blood tests for just about everything under the sun including Epstein Barr, cat scratch fever, the whole works. Everything came back normal and she suggested I wait another two weeks and then come back. In the two weeks wait, another few nodes popped up down my neck that felt similar but weren't as big. Maybe pea sized. A tube shaped lump also came up in my cheek. 

So I went back and saw a Dr this time. He said I was hysterical and that young people like me "don't get cancer" , and that they didn't even feel that hard - he said they were rubbery, like the tip of a nose. I asked if he would at least refer me for an ultrasound and he agreed to book me an appointment for in a months time to shut me up. I didn't raise my voice or anything - he seemed pretty decided that I was wasying time. 

I went for the ultrasound. The radiographer said they were indeed quite large but in an awkward place so he didn't want to biopsy them at that point as it would need anaesthesia. I went back to the doctor who said no follow up was needed and suggested I start meditation for my apparent anxiety.

I've had negative experiences with this Dr since for other issues. I haven't wanted to return to the GP since as he made me feel like a time waster,despite the nurse taking me so seriously. 

I thought they would go away but they have kept growing - the largest is about 4cm across. They don't move much now, and three  nodes have recently come up in the hollow of my collarbone too despite me having no signs of infection. I'm frightened to call the doctor and be dismissed again as a crazy person, but I can't afford a private biopsy (ironically I work for the NHS). I'm exhausted all the time and have recently started experiencing hot flushes at night which are very unpleasant. My dentist referred me to the oral surgery clinic at the hospital to have the lump in my cheek checked after he saw the nodes in my neck were raised, but all non emergency appointments have been cancelled due to covid. 

I'm lost. I'm not sure if I am just a hypochondriac or if I have a genuine problem and medical professionals I've gone to seem to blow hot and cold. I was hoping that someone here may have a similar story and be able to offer some advice. 

Thanks and happy new year

Rukie

 

  • Hi,

    Have you considered requesting to be reviewed by another GP or even reigistering with another surgery? A second opinion may help to ease your worry.

    My GP has been so kind and supportive. Within fifteen days of my first appointment, I have had an USS and biopsy and will receive my results tomorrow.

    Steph