Covid delays for urgent referral

Hi, 

I'm 32 and suffering horrendous anxiety waiting for my referral appointment. 

2 years ago last Nov I had a car accident and I was in the back,  nothing major, but someone hit the car from behind and I suffered with suspected whiplash which has never fully gone away, only got worse/spread. I've seen, physios, chiropractors, orthopaedic consultants, GP's and non of which can give me a n answer to what's going on. I have a full ache down my right arm, neck and shoulder blade pain which is contactly there. My upper body is literally stiff as anything recently and I'm 'clicking' all over the place when I move from a position. 
Anyhooooo, you get the idea. So, more recently I have experienced a change in my breathing, not so much that I'm gasping for breath but I feel as though it's harder to breath in. I also found a lump in my right breast, so I went to the GP yet again. First time I was told it's just normal breast tissue, second time I was told 'I could convince myself there is a lump there' and was referred for an urgent breast screen last week and was told that it could not be until the end of Jan-beginning of feb due to covid. So I went back to my GP today (yes sunday, who knew) where she said that yes there is a definiate lump and I should appreciate and realise how lucky i was that actually I will be seen quickly and need to just wait it out, and she's didn't really let me get a word in really. I feel as though the GP's I have seen are really dismissive. I've not been sleeping, panicking that my accident may have been a red herring and it's all I can think about, I also have ADHD and find it really hard to switch off my mind which is not great either.
I feeL like we are told constantly to check our boobs etc and get things checked as soon as possible but when you are actually concerned, you get fobbed off in return. 

After writing all of that, I'm not entirely sure what my question is apart from does anyone have any thoughts or ideas that may help? 
 

Thanks in advance 

 

 


 

 

  • Hi!

    I was sorry to read that you will have to wait beyond the usual two weeks to attend your breast screening clinic referral. I attended a GP appointment on 30/12/20 and had an ultrasound and subsequent biopsy performed on 08/01/21, which I am currently recovering from. It is positive that you have been referred, but you should have been provided with details on how to cancel or reschedule your appointment via online or by telephone call. Perhaps you could try to reschedule your appointment for sooner in case there have been any cancellations?

    Have you also considered calling the free helpline advertised on this website to talk with a nurse regarding how you are feeling? 
     

    Steph

  • Hi Steph, 

     

    thank you for taking the time to reply to me :-) 

    I haven't even received an appointment yet, I rang and they just said we will be in touch. I haven't got any info about online appointments or anything like that. 
     

    Many thanks

  • Oh no :( When I attended my GP appointment, my referral was completed at the same time (I was able to choose the date and time best suited to me, although I opted for the first available appointment). Hopefully, you will receive information soon. Is the option of booking privately a possibility for you? A work colleague of mine did this. 

  • Thank you, I am going to call up the Nuffield today but ultimately there isn't much around my area to be honest. it seems super unorganised compared to the process you have had. 
    I really hope your biopsy comes back clear lovely, have they set a follow up date? x
     

  • Did you manage to make any progress today? I hope so. I work for the NHS, but this process has really opened my eyes as to how the same service differs due to geographical area. This should not be allowed. I receive my results on Thursday. I am preparing myself for the worst, but that is my personality!

  • I did actually, I managed to get a private appointment at the Nuffield for next Thursday. Still a bit of a wait but it's better than what the nhs clinic told me today. I rang them and they said that they are not even looking to book in new patients until February and there is a long waiting list before me. 
    The lady at the Nuffield was super concerned about how much it is going to cost me and genuinely listened to what I was saying, which was nice. It works out a lot of money if I need all the tests the maximum I sat and worked out with her would be £1k. That's so much money to me, but I just don't think money should come into it at all. I'm lucky enough to have just about that in my savings.  
    I'll be keeping my fingers crossed for you on Thursday, please let me know how you get on. I really hope it's good news for you.  It's so hard, esspecially with the added stresses of covid and knowing that the entire county is grinding to a halt. Do you need to go in for your results? I'm not really sure how that bit works? Xx

  • Fantastic! I am pleased to read that. It could have been several weeks or months before you could have been referred then. I totally agree about the financial perspective, but I back you in your thinking. A colleague of mine waited six months to be seen regarding her breast lumps and was disagnosed with a progressed form of breast cancer and is now undergoing so many types of treatment. Her story spurred me on to book that GP appointment without delay and so that is all I can say to you. I have an appointment with the consultant at 3.20pm. I assume he will just discuss the results and what the plan of action is next. Whatever the lump/mass is, I want it removed as it is causing me pain. I will definitely update you.

  • Good Luck today! I'm keeping you in my thoughts.fingers