Looking for Advice (Enlarged lymph nodes for 10+ months)

Hi, so I'm just looking for 'other voices' to help put my mind at ease, cause I know first hand the more you panic- the more your body mimics symptoms. 

To start, I'm a 27 y/o female, and I've got 3 englarged lymph nodes in my neck- I initially thought I had one, but upon being urgently referred by my GP, the Doctor found 3 and wanted me to have an ultrasound. The initial node I went for, I noticed around 8 months prior and stupidly ignored it cause it wasn't too abnormal in terms of size, so I thought it was nothing- just immune response, and the NHS was struggling with Covid- no need to add to it.

I finally went when I 'found' it again, and it had near tripled in size... and upon realising how tired I'd been when I really shouldn't have, as I had the most free time I'd had in years during lockdown. (I'm still a student.)

So fast forward, I went for the ultrasound- and I feel awful for saying this, but I really struggled to understand what he was saying. English not being his first language and the mask further obstructing, I'm not 100% what he said- but I'm pretty sure he confirmed they were lymph nodes, and that I had nothing to worry about. 

I left feeling much more at ease, as while not certain I was pretty sure that I was fine. I had my follow up a few weeks later for the results, but then everything went to heck with Covid again, and it was cancelled. Now- my head is telling me, if they felt it was something bad- I would've at least heard from them by now. 

But, then my mum pointed out something to me that I hadn't even thought to mention cause I didn't link it to an englarged lymph node- I've been getting really bad pain in my lower left ribcage, and its actually pushed out slightly? I can get my fingers under my rib cage on the left side, but not the right. 

I have also lost weight. I've never been a healthy weight, but I have never in my adult life been in the 5 stone range. I'm around 71 pounds now which is scary. Moreso considering the fact I thought I'd been doing well with my eating... I 100% have an appetite, I feel really hungry, but I also get full really quickly which I also know could be due to my stomach shrinking. But I was eating more than ever prior to this pain starting, so that doesn't make much sense to me. 

I noticed last Wednesday, that the largest lymph node has gotten notably bigger and has become more 'fixed' / 'firm'. I can now see it as a visible lump and its around 2/2.5cm in size.

Then on Friday, I actually thought I was dying... The main reason I'm underweight is I do have issues with my GI tract- so I do get bouts of abdominal cramps that range in severity, but for the last 10+ years they've been isolated to one area (Lower right; ileum), this time- the pain was radiating through my entire abdomen and going up into my lower left ribcage. I physically couldn't move when the pain started, I thought I was going to be sick and was incredibly light headed, it was utter hell.

Again, not sure if this could be related even remotely as I do have pre-existing issues, but it just seems suspect to me that I start getting these pains in my lower ribcage, and then a usually isolated pain spreads???

I'm not experiencing night sweats- if anything it's the opposite, I keep waking up shivering. Which is odd as my room is home to numerous reptiles, and is in no way cold due to multiple heat lamps that are on 24/7. I also get breathless and chesty very easily and walking up or down the stairs can leave me breathing heavily for sometime... but this could also be due to me being severely underweight.


I guess the main thing is I'm afraid... and I have people around me telling me I need to push this, my mum especially throughout the events on Friday.... But the ultrasound was 'ok', and I'm pretty sure it isn't possible after 8+ months for a enlarged node to decide to become malignant barely a month after an ultrasound, right?
 

I'd likely have felt better if they did a biopsy, but this wasn't even mentioned :sad: 


Again, I'm not looking for a diagnosis... just advice. I'm very shy, and I don't like pushing things or making a nuisance of myself.. it took my mum basically storming back into the GP and explaining my GI issues to them in detail for them to take it seriously and stop calling it "normal girl problems" and 'Anorexia nervosa' *face palm* 

and I really don't want to push this and add to the NHS' load if I don't have to. 

  • Hello Oishii

    I'm sorry to hear about the ongoing health concerns that you've been dealing with over the past months and that things have recently gotten worse. 

    Regardless of the results of your ultrasound you're obviously feeling unwell and continue to be concerned about your health so please do get back in touch with your GP who will be best placed to talk things through with you and decide on the next steps. 

    I do hope that you have some answers and reassurance soon and that things start to improve. 

    Best wishes, 
    Jenn
    Cancer Chat moderator