Worried about dads CT/next steps

My dad (79) went to his GP before Christmas because he was feeling sick/being sick occasionally and had a loss of appetite. He’s had prostate cancer for the last 12 years so his GP said he’d get his PSA tested (which was due about now) and would write to his consultant. His consultant wrote back to him and said there had been a slight rise in his PSA which she wasn’t worried about and that she didn’t think him feeling unwell was anything to do with his prostate cancer. But she ordered a CT and MRI. He’s not heard back from his consultant about those scans (from a prostate perspective) but his GP called to say 'something' had shown on his duodenum on the CT and he’s to do a stool sample. So now I’m panicking about what the something is and what they’re looking for. Unfortunately dad hasn't asked any questions and seems happy to let the process run it's course. However, the lack of information is really panicking me! I thought if it was a cancer that the CT would more or less confirm that so I’m wondering why they want a stool sample? I thought a stool sample was usually the first step in testing so I'm confused about what they are looking for. My mum had similar issues last year where she was anaemic and the first step was a stool sample (which was clear) followed by a colonoscopy (also clear). 
 

any advice would be really appreciated, particularly around the sequence of tests. 

  • Hello Always_Worried, 

    I can understand why you are feeling a bit confused by the sequence of tests and it is true that often the stool test will often come first. It sounds though like the GP decided to investigate things further after something was shown on his duodenum and therefore thought best to have a closer look at your dad's bowel hence the stool sample.

    If you wanted to talk to our nurses about this in more detail, don't hesitate to give them a call on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm. They will be happy to tell you more about the sequence in which tests may be carried out in your dad's situation. 

    I hope this helps! 

    Best wishes, 

    Lucie, Cancer Chat Moderator

     

  • Hello, a bit of a follow up question that I'm hoping somebody can help with. Dads results way back in January were satisfactory and from the GP results line, he was under the impression no further action was needed from the person he spoke with. 
    However, he's received a letter today advising that he can arrange an appointment for an endoscopy and to let them know if it's no longer needed. He'll be phoning his GP on Monday but we're once again confused about what's going on as we thought things had more or less been out to bed. He hasn't spoken to anybody since the results of his stool sample so wouldn't know if this is needed or not. 
    Are we to take it that there is still concern about the 'something' on his duodenum? Can anybody say what the something could possibly be? 
    He's been feeling absolutely fine the last few months, no sickness or nausea but this letter has concerned us. 
    If this were a cancer referral, is this a usual wait time? Also, would anybody normally be in touch to discuss next steps and what they are investigating for in the case of suspected cancer? 
     

  • Hello again Always_Worried, 

    I think it is indeed important that your dad rings the GP on Monday so that they can explain things to him in more detail. They will be able to say why this endoscopy has been recommended. Unfortunately no one here will have the expertise to tell you what this might mean but his GP will have all his medical notes and will be able to tell you more I am sure. It's great that he has been feeling fine in the last few months. 

    Sorry I can't help more myself and I hope that you will hear from others on the forum who have been in a similar situation themselves. Perhaps you could give our cancer nurses a call on this free number 0808 800 4040 and talk things through with them? Their helpline is open Monday to Friday from 9am to 5pm. 

    I hope you get some answers soon! 

    Best wishes, 

    Lucie