Hi everyone, so sorry for this long one after 9 months I have been referred on 2WW heamotology appointment.

My situation started in March/April when I randomly had a soft collarbone swelling appear with itching all over my back. I had a chest X-ray and bloods which came back clear. Neck USS cam back clear apparently said nothing to worry about or sincere in notes. Over the next few months it didn't go down, itching continue just felt generally unwell - consistently played down by doctors. I broke down on phone after starting to get hot flushes to be referred to ENTwho fobbed me off didn't even check my swelling said it can just happen but will send for MRI for reassurance which was clear, still felt unwell bones aching started to become bloated and on/off in hot flushes they would come and go. I had other bloods came back normal and kept pursing. I was sent for a abdomen pelvis X-ray due to feeling bloated and today was found to have a enlarged spleen. The doctor rang out of hours this evening to say although it wasn't in the highly worrying zone due to my symptoms and it being enlarged she is going to refer me. 
 

9 months later having continue to carry on with life and work but constant anxiety of feeling generally unwell not right and constant swelling I have finally been referred and have read that if I do have lymphoma spleen involvement indicates later stages, I have got an 18 month old daughter, qualified as a nurse and turned 28. I'm beside myself and so sad no one listened to me for  so long! 
 

Has anyone had experience with this, I know you can't tell but does my symptoms along with spleen enlargement indicate lymphoma and later stages. 
 

thanks so much in advance for any guidance and help

Jade