I’m 18 and think I have Lymphoma

I feel like I shouldn't be on here but I don't know what to do. I'm 18 and relatively healthy but I think I may have lymphoma. A lump appeard on the left side of my neck about a month and a half ago. Before Christmas I went to get it checked by a GP, I may be wrong, but it felt to me like they were concerned. They took blood tests the same day and they came back normal. I then got a call just a few hours later that I needed and ultra scan and they confirmed it was a swollen lymph node. I was quite relieved until they called me in again for a second scan and a biopsy. This time I saw the scan and it didn't look right. All the nurses were extremely kind, but to the point they were treating me as if I were a child? Maybe they sensed I was sh*tting myself. But again, it felt like they were concerned, I'm not sure. I had the biopsy on Christmas Eve and I understand that it's New Years and people are busy, but I'm so scared. Everything was happening so quickly and urgently and now there's no news. I just need to know what I'm dealing with here. I can't think about anything else, I can't get out of bed. But that might be because I'm really tired all the time :/ which I read is a symptom. Apart from being tired, the only other symptoms I have is a rash on my stomach, itchy skin and when I drank last night at New Years, the lymph node ached like hell. I feel selfish being so worried, my grandad died a few days before Christmas from cancer and I haven't been in the right mind space to support my dad or even be a positive influence. I can tell I'm draining everyone and i hate it. Although 2020 was horrendous, I was so ready for 2021. I would be going into it with a new relationship, I was ready to finally pass my driving test, see friends again and get my diploma. But all that could change with one phone call and I'm terrified. Sorry for rambling.

Milly

  • Thank u so much for replying,

    Omg that's sounds awful what you're going through :( Im so sorry, I really hope you get your answers soon. You're just like me, I usually just go along with the doctors advice and minimise my problems. It was actually my mum who pushed me to keep calling and pestering them. Being Christmas and all I knew they'd be busy so I've just been waiting for them to call, but you're right, I'll call tomorrow just so they know I'm on their case. I've friend requested you, please let me know if u get any answers for your diagnosis.:)

    Milly xx

  • Hi Cam

     

    Of course. Yeah with lymphoma (Hodgkins) you tend to have ABVD chemotherapy and halfway through the sessions you have a scan which tells you if you're in remission or not. If you are, you still have the other chemo sessions to make sure it doesn't come back. I was told it was 'most likely lymphoma' after my CT scan results came back and showed a mass in my chest. Don't be scared, if they're checking you with scans, blood tests and feeling the lump then they are unlikely to miss anything lymphoma related. Have a look at my page on here as I documented my diagnosis process and also wrote a blog if you ever want to look at that. Feel free to message me, the waiting is awful but it could be something else such as an infection!

     

    xx

  • Hi Milly,

    I'm 18 too and i've just been through a very similar thing to you! 

    Around september time i found a lump on the back of my neck on the left. i went to my doctor and he ordered a full blood count and it came back completely fine, he told me that as i had no other symptoms i should leave it six weeks to see if it went away. in this time i turned 18 and all i did was worry. it never seemed to go away, so they booked me in for an ultrasound which i had on the 21st December. the doctor that saw me in the hospital felt the lump before he started the ultrasound and he told me that he thought it was a completely normal lymph node. he then did the ultrasound and he said that it was completely normal and healthy. he also said that it may never go away. even though i've been told by doctors that i am okay, i do still worry. 

    I just wanted to let you know that worrying is completely normal (that's all i did for three months!). 
    If you want to message me then do! I'd love to help reassure you as i wish there was someone there to reassure me when i was going through what you are now. 

     

    it would also be great if someone else could reassure me once again even though doctors have (i'm a big worrier)

     

    xxx

  • That's what I'm doing as well looking up statistics etc even though people say that's probably the worst thing to do lol. But I just can't think about anything else rn, I feel like I'm preparing my self for worst case scenario. I've friend requested you, please let me know if you get any answers or want to chat. fingers crossed it's nothing serious xx 

  • I wanted to let you know you are not alone. I'm 31 and noticed a large lump on my neck 3 weeks ago. Looking back at photos I think it's been there since August. Over the last 3/4 months I've also had persistant itching, didn't even realise the two could be linked. I have a blood test on Monday and waiting on my appt for an ultrasound and an urgent referal to ENT clinic. Let me know how you get on. I'm going to try and keep myself distracted a much as possible. It's going to be an anxious couple of weeks 

  • Hey thank u so much for reaching out, 

    That's amazing you went into remission after 3 months, so happy for you! I've read it's common in young people and very curable. Of course it would be a shock and I would rather not have cancer, but I'm feeling optimistic either way. And you're right, I could be reading into how the doctors were acting way to much because I'm paranoid about the whole situation lol, they are just doing their job. 
    Milly xx

  • Hi, 

    I'm 22 and in a very similar position. Have had a neck lump for a while, another one came up and have had itchy skin for a while and am now experiencing all sorts of aches and pains in that area

    I had bloods which were fine, am awaiting chest x ray results and have an urgent ent appointment on the 12th, feeling very anxious and unable to think positively at the moment x

  • Hey Milly

     

    I'm 19 and I'm going through the same experience at the moment. I've had a lump on my next for about 6 months, and I finally went to the doctors about it 3 months ago. I'm a heavy smoker so I was terrified about the thought of getting it looked at and it being bad news. I went to my GP and had 2 lots of blood tests done, one came back normal and the other was abnormal. I was given some strong painkillers that somehow made my neck swell even more so I ended up in A&E. I had more blood tests done that came back inconsistent and a chest xray that didn't show anything worrying. I was booked in for an ultrasound and the doctor told me that it was inconclusive and had to be repeated in a few months. Fast forward to now and that second ultrasound is booked in for next week, with a high possibility of a biopsy as well.

     

    In the meantime my anxiety levels have been through the roof. I work in a warehouse and I have no escape from doing pretty heavy lifting all day, and with how I feel at the moment it's hard just to get up in the morning. I'm taking painkillers every day just to get out of bed. My body feels exhausted all the time and I've developed really bad chest pains. It's all been so scary but it's nice to know that I'm not alone and I'm so grateful that I'm not the only one.

     

    I hope you're okay and the doctors can quickly sort it out for you because the waiting is the toughest part. Fingers crossed that I'll get more answers very soon.

  • Aw of course I'd love to chat to you, I'm worrier as well. But also quite good at reassuring others, so I'd love to help you if I can, wish I'd take my own advice sometimes haha. I worry about anything, my parents actually thought it was a stress related lump before I went for tests lol.

    Milly xx 

  • hey, thank you so much for the reassurance, i really hope that everything's okay and we both get good news!! mine hasn't grown at all but also hasn't gone so it's frustrating, also no pain other than aches but i feel that may be a little anxiety based as when i'm not thinking about it i don't notice it, i'm going to ring doctors again tomorrow and hopefully be seen to and stop worrying! again thanks so much, i'm sure my boyfriend has had enough of my crying to him so it feels nice to know i'm not alone:)